Perhaps An MS Princess?

Lousy sleep and a boring, thankfully, MS month equals a blog re-post

Who would have thought that the effects of missing my smart and adorable little niece, who lives way too far away, would translate into my blogs?

April I wrote about Barbie and May I wrote about giraffes, both things she enjoys.

Coincidence? I think not.

But what she really loves are princesses and since I ran out of days to write this month, new things to write about-thank you MS for being somewhat kind to me lately, and we all have bad nights of yucky sleep from time to time, I thought it fitting to repost a princess blog in honor of the youngest girl in my family.

Hardly a Princess, Barely a Pea

A weirdly dark night of one MS soul

Technically, I know that the phrase “dark night of the soul” refers to a question of faith, when one is at a low point, filled with confusion, dread, weakness, and sorrow. It is bigger than multiple sclerosis.

Maybe. 

It doesn’t really feel bigger than MS on a bad MS night filled with, well, confusion, dread, weakness, and sorrow.

On a recent night when it’s possible I may have forgotten to take my “so I don’t have to pee all night” medication, I couldn’t sleep. And, you guessed it, I had to pee all night. 

I was ridiculously tired but every time I even started to drift off, there it was, the need to pee again. This was made worse by the fact that though it was nearly midnight, there was a bit of activity outside my front door. Since I couldn’t sleep anyway, I had to go out and investigate. 

There I found a truck idling near a fire hydrant that was spewing a ton of water into the parking lot. So, likely a water main break. Which could explain the other thing keeping me awake, the fact that the water faucet in my sink was flowing this hideous brown water when I turned it on. The toilet was filled with brown water too. 

Being a germaphobe, this grossed me out. Also being a germaphobe, I insist on washing my hands every time I use the bathroom, so things were definitely not going well when it came to the cycle of sleep I craved. I didn’t really know much about plumbing- my own or my water supply’s- but these two issues, the constant need to pee and disgusting brown water visible when I did, were enough to do me in a bit.

(Since, as most germaphobe’s do, I have a ton of hand sanitizer around, I could have just used that to wash my hands and called it a night. Or, at least tried to. But the thing about midnight when you can’t sleep is that you are not usually thinking your best thinks, and it took me 90 minutes to come up with that solution.)

But it wasn’t just these two minor issues- constant need to pee, broken water pipe- that were getting to me. Somehow, when I tossed and turned, I found a grain of sand between my mattress cover and my bottom fitted sheet. 

So what?

Why is that a big deal?

It isn’t.

Or it shouldn’t be.

But because I couldn’t sleep, I now became focused on it.

It was right in the middle of my bed and my hands refused to ignore it. Whatever side of the bed I slept on, however I turned, whatever sleeping position I sought to bring on some slumber, there it was. I had changed the bed sheets that day and that is likely when the grain of sand showed up.

How?

Why?

Where did it come from?

Who knows?

One grain of sand should not keep me from sleeping. I grew up on Cape Cod where there are millions, maybe billions or trillion grains of sand.

(How come I don’t know a better estimation of that and why isn’t that question a Cape Cod math problem? If Yvonne spends the day at the beach, and she brings one pail and two shovels, how many grains of sand does she find?)

The point is, I have slept on the beach and thus slept on many, many sands. From the time I was a two-year-old having a meltdown after spending the day with my family on an outing, to the exhaustion that comes from barreling out of the water quickly when you are nine and your older sisters start humming the Jaws theme, to the hundreds of times I went gossiping and tanning with my friends, to the far too many beach parties where perhaps I had one too many wine coolers and just needed a little rest to keep the partying up, I do not have a problem sleeping on sand. 

And one grain of sand is not uncomfortable or even obnoxious. Unless you can’t sleep, it happens to be in the middle of your bed, and you can’t stop obsessing about it.

This was my pattern that night- get up to pee, get skeeved out about the brown water, crawl back into bed and tell myself to stop obsessing about something so silly as a little grain of sand, obsess about it anyway, and then obsess about obsessing about it.

At 2 AM I couldn’t take it anymore and got out of bed, knelt on the floor, lifted the fitted sheet, stuck my arm under it, leaned in as far as I could and tried to reach the offending sand. I couldn’t. I got back into bed and thought about the old fairytale, the Princess and the Pea. What I thought was, that it was stupid.

Your body, no matter how big or how small, would just crush a pea. Even if it wasn’t cooked. If Hans Christian Anderson really wanted to make a point, instead of a pea he should have used sand. That is really what makes it hard to sleep, even for someone like me who has slept on billions of grains of sand. Or more- that old math problem again.

Not feeling like a Princess at all, I added to my stress by trying to talk myself out of unmaking and then remaking my bed. Doing that would just be going way too far, even for me. Instead, I grabbed the remote and gave in to another obsession. 

I turned on Dateline.

I know it is weird to fall asleep watching a true crime show and Dateline should give me nightmares rather than blissful sleep. I don’t know why but sometimes it helps. I’m going to say it is the voices of the narrators.

Don’t believe me? I dare you to turn on a Keith Morrison report late at night and stay awake. There’s a reason why new episodes air on Friday nights.

In the morning, likely the most bleary-eyed princess ever, I was still obsessed with the sand. I got up and before I did anything else, I unmade my bed, found the intrusive sand, tossed it, remade my bed, and finally began to recover.

I have no idea what this particularly bad MS night says about me.

I am weird?

MS sucks?

If I am so sensitive that even a grain of sand can irritate me, maybe I am a princess after all?

If that is true, I am the worst princess ever!

What I ultimately decided was that I am not a princess but I am weird, multiple sclerosis does suck and maybe, just maybe, the princess in the Princess and the Pea story actually had MS, just like me.

12 thoughts on “Perhaps An MS Princess?”

  1. I do love your blogs. Having MS for 26 years I have had some strange issues too. Not fun.
    However, I find your humor uplifting and I feel better.
    Thank you

    Reply
    • Wow, Catherine that is a long time. I’m hitting 17 years. A lot of progress in treatments that I’m so grateful for. I am also grateful that my writing has helped to make you feel better. That brings me great joy. Wishing you all the very best. Thank you for staying with the me and my blog.

      Reply
    • Too funny Tweetie! My MS brain didn’t even get the play on words, at least not when I posted it this time. LOL I’m glad I’m not the only who tries to fall asleep to horrible crimes but at least yours are fiction! Be well my friend..

      Reply
  2. Hi Yvonne, I’m 61 years old and told I have MS in March 2026 on our son and daughter in laws birthday so will not forget that date. Your blogs make me laugh and cry, still trying to decide what is nerve pain from MS or Arthritis so some days blame both. Yes MS sucks. Can relate to brain not working too, sleep without waking to pee what’s that!!!

    Reply
    • Hi Cherie Thank you for checking out my blog and I am so sorry you have been forced to join this sucky club. You will find you will have a lot of not knowing what is MS and what is something else so yes, blame MS, always!! That’s what I do! But still talk to your doctor to get help where you can and the good thing about a diagnosis is you can get at least some help. But you likely know all this already. We learn quick with MS that there is so much we know that we don’t know! Thank you for sharing that my blog helps you to laugh- that is why I do it! And please also know that I cry with you. My joke to my friends and family when I was diagnosed is to invest in Kleenex- they’ll make a million on me alone! Take care my friend

      Reply
  3. Two beautiful princesses! Once again your writing is uplifting and a wonderful, entertaining read! I’m waiting for your novel! I’m thinking you would put together a great romantic comedy!

    Reply
    • Thank you so much my friend!! I really appreciate that! I started one about Provincetown but got stymied. Maybe I will pick it up again. I hope you and the beautiful grands are doing awesome!!

      Reply
  4. Hi, my sweet friend ~

    A grain of anything disturbs me terribly. As a chronic insomnia sufferer for 20+ years, it doesn’t take much to ensure no sleep for the night. I must have total darkness and an extremely cool room all year around … my husband insists on using words like frigid, Arctic tundra, meat locker, but he’s seriously being dramatic, a bit princess’ey! 😂 And I have to sleep completely in the buff because wrinkly, bunched up clothing is another cause for no sleep. When this first began in my mid-thirties, I could pop a Melatonin or two and would relax enough to drift off to sleep. Melatonin worked a grand total of about 3 months. Such has been my relationships with sleep aids for the past 20 years. I have tried virtually every sleep aid on the market. They either don’t work at all, kind of work for a very short time, or the side effects are so bizarre, I have to stop them … cue the crazy Ambien stories here. They all include either eating like a cave woman, cooking a full course meal with the use of sharp objects, stove, oven and such, going outside in nothing but a T-shirt, and numerous falls with striking of the head. Thank GOD, the other two most common sides effects (cooking being the 3rd that I definitely did many times) did not occur- driving and having sex with strangers. All these episodes occur without any conscious awareness of the Ambien user at the time, nor any recollection of the episodes later … other than the obvious mess(es) said user leaves in her wake. So, you’re not really sleeping, you just can’t remember that you aren’t. The regimen I’m on now has worked for the longest Clonazepam 1.5 mg and QUEtiapine 150 mg – 300 mg per night. Neither of them are in the sleep aid classification, but they work for me.

    Reply
    • Wow my friend, that sounds like a literal nightmare!!! So sorry for your sleep struggles but glad you somewhat figured it out. Damn that it took years!!! We girls need our slepp! I went through several trial and error periods with the bladder meds before I finally figured out what would work. Getting up 2-3 times a night is better than 10-12 (really.) I’m fortunate that I am usually able to go back to sleep afterwards but this night set me off. But I feel your struggle my friend and thank you for understanding how one little grain of sand could contribute to the problem. As always, be well and that you for your support. Now go get some good reast!

      Reply
  5. Thank you for the entertaining blog Yvonne! I want to know what is the medication you take to stop you from peeing all night long because I have that problem.

    Reply
    • Thank you so much Katherine! Thank you for checking out the blog and commenting. I’m glad you liked it. I’ve tried all of them I think and the only “don’t pee all night” medication that works for me is……drum roll…. Vesicare or Solefinacin Succinate which I thik is the genric form of Vesicare. It is the sleep bomb!!

      Reply

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