An MS’er looks at the calendar
While this blog was written two years ago, since I just returned from the same trip, and dates do not change, I thought I would offer it to you again. Mostly because I am way too wiped out to come up with anything new this week….
It’s the Monday morning after a month long stay in another state, visiting relatives. My family and I had returned late on the previous Thursday evening. The next day it was all I could do through my fatigue to go to the post office and pick up the collected mail.
(I had written about after travel stress and mail previously- check out the blog post from last year’s trip, Its On My List.)
I spent the weekend alternating between resting and going through the mail, resting and sorting the mail, resting and paying late bills, and resting and responding to other mail.
Before I stepped into the shower this Monday morning I looked at my calendar and saw written for today, 12/17/12, “confirm insurance, get approval and schedule MRI.”
While I was gone, changes had been made to my insurance and I knew getting this straightened out was the day’s priority. Yet in the shower, the date was bugging me. There was something more to 12/17, but what?
It didn’t help that December dates are pretty busy for me and not just because of the huge holiday that everyone knows about and adjusts their month around.
(You know you do- even if you don’t celebrate Christmas you are making plans as all your favorite places are closed that day!)
It’s also a birthday galore month for me (besides the big guy’s of course.)
This particular December month is filled with the birthdays of one nephew, two cousins, an aunt, a niece-in-law who is also the mother of my two great nephews, a friend turning 40, another friend who turned 40 last year, a third friend who I thought was turning 40 as my MS brain completely forgot we celebrated her 40th last year with the other friend who turned 40, and a fourth friend who is my same age but who I can never remember if she is younger than me thus hitting my age this month or is older and is hitting the next dreaded year first.
At one point I discovered that a cousin-in-law I have grown particularly close to this past year also had a birthday this month that I almost missed-thank goodness for social media birthday updates.
While watching the Rolling Stones 50th anniversary Pay per View concert at a friend’s house, I was reminded that Keith Richards birthday was coming up (12/18/43 for those who would like to note it on their own calendars.)
I have always been a Stones fan and think Keith is the coolest of the cool and one of the most talented undead humans on our planet. But remembering his birthday is a bit extreme for my taxed brain.
Perhaps I remembered because I had listened to the audio CD of his autobiography Life this past summer. Still, retaining the actual date is random.
(Speaking of MS as this is an MS blog, did you know that Keith had a beloved aunt who suffered from MS? He has a real understanding and sympathy for what living with MS is like. How much closer to perfection can this rocker get?)
And I don’t care what all these folks say, they must have gotten ripped off from the birthday fairy or Santa Claus when they were kids.
Anyway, what is up with 12/17? There is that whole end of the word thing but that is scheduled for 12/21.
I finished the shower and made calls and miracle of all Christmas miracles, the calls went smoothly and I scheduled my next MRI. It wasn’t until evening while I was writing on my calendar a reminder to stop taking Aleve 4 days before the MRI (and already bemoaning what an achy miserable blob I will be those days) that it FINALLY occurred to me what it was about 12/17 that was bugging me. 12/17/09 was the day I was diagnosed with multiple sclerosis.
Here is one of the many weird ways MS works. Every MS’er I know (me included) automatically remembers the day of their diagnosis. I can recall the date of diagnosis quicker than I can recall my social security number.
Yet, looking at the calendar on the exact day, and doing MS related errands involving this sucky anniversary, I couldn’t get my head around why this date was flashing like a black flag in my tired MS brain.
Oh, but the memory the understanding of the date brought. Three years ago I was a hurting, exhausted, smoking, depressed, stressed mess working in a job I generally enjoyed but was the root of a lot of the stress. And I was barely walking. Yet I was trying to focus on the spirit of the Christmas holiday despite MRI’s and doctor appointments.
Today I am less hurting, not smoking, less stressed, not depressed, better walking, not at that job, less of a mess.
I’m still freaking exhausted ALL the time though and am about as sick of dealing with fatigue as folks are sick of hearing me whine about it!!!
I have discovered skills that I didn’t know about three years ago (writing and public speaking but I guess referring to them as skills is really up to readers and the few audience members I have encountered thus far.)
And clearly, I am still as spacey as I was back then as evidenced by my spending the day trying to figure out why this day was standing out even as I repeated the same day to MRI people scheduling my three year MRI!
Here is another thing that has not changed. In 2009, the most important date was the one coming up the following week. Even through the pain and the fear about what was wrong with me, 12/25 was the most important item on my calendar.
If it is all the same with you, I will continue to focus on the biggest date of the month. So for the others (12/3, 12/3, 12/5, 12/15, 12/16, 12/17, 12/18. 12/19, 12/24, 12/27, 12/28, and 12/29,) your dates are ok on my calendar.
But the one that brings me the most joy is 12/25.
Merry Christmas Everyone and whether you celebrate Christmas itself or not, a healthy, blessed holiday season to all……
PS Helpful holiday gift hint- MS Madness! A “Giggle More, Cry Less” Story of Multiple Sclerosis makes a fun gift for everyone!