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Hey MS, Hug This!

Some results, dancing, and a little bit of a book

 

Hope everyone is stuffed in a good way this day after Thanksgiving!

First up on today’s blog, I must apologize for misstating the chapter of MS Madness: A “Giggle More, Cry Less” Story of Multiple Sclerosis. I have been talking about the Hey MS, Hug This as chapter 19 in my upcoming book. It is actually chapter 20. Forgive me for this lie. It wasn’t intentional. It was MS’s fault.

As promised, I had planned to name the winner of my first contest. Unfortunately, there were no winners, and for that, I apologize as well. I thought it would be easy. The questions was, Hey MS, Hug This, is one of the more serious chapters in my book and it details one of the most frustrating aspects of multiple sclerosis. What is that aspect? Hint- it is not the MS Hug.

The most common answers were fatigue and bladder issues, and it is true, those are incredibly frustrating. But the answer I was going for was FRUSTRATION itself. To me, frustration just sums it all up.

A painful symptom is called a hug.

 

The so you don’t pee all night meds give you wicked dry mouth which makes you need to drink water constantly which makes you pee even more.

You can fight fatigue by taking better care of yourself but taking better care of yourself requires energy you don’t have because you are too fatigued.

And on and on the frustration goes with multiple sclerosis…

I’m sorry that there were not any winners but I thank you all for entering. I will announce my next contest on Friday, 12/6 and I promise that the prizes will be greater and I will offer more flexibility in the answer to guarantee a winner!

But also as promised, if you are still too stuffed to move and want a little reading, here is a preview of MS Madness: A “Giggle More, Cry Less” Story of Multiple Sclerosis.

 

From Chapter 20 Hey MS, Hug This!

…..What do things like boyfriends, memories, and balancing partying with being responsible have to do with MS? All of them were aging me much faster than I wanted to be aged. And that was completely frustrating! Maybe only a little frustrating as I was already a cognitive mess. But in these months following the diagnosis, all these things started to swirl together in my jumbled brain. It all made relieving, frustrating sense…….

……By my late thirties, I was so convinced I was turning into an old lady far too early that I began to state this fact to people. I had noticed Zack around town before we actually met and even though he claimed he caught me making googly eyes at him, I always denied it.

“I was NOT making googly eyes at you,” I would insist. “I just wanted to know who you were and what you were doing in my town, that’s all.”

After we actually met, he was more the pursuer. He was two years younger than me and I already felt like an old lady, so I balked at dating a younger man. When he asked how old I was I told him that I was eighty-seven. Luckily, he ignored my feeble joke and we started dating anyway.

 

My elderly weirdness increased. My bladder became more obnoxious and soon I stopped drinking beer. One beer and I would have to hang out near a bathroom for hours, at least.

The extreme fatigue came next. Zack and I could never watch an entire movie together. I was always asleep halfway through and would have to finish it the next morning with a cup of my grandma’s tea, sweetened just so. By that time, Zack’s normal brain had moved on to other things so rarely did we ever enjoy or discuss the movie together.

We kept trying though and even went with friends to see the second installment of the Pirates of the Caribbean franchise at a surround sound theater. Amid the bar fights, explosions, and general loud pirate activity, I was asleep.

(For the record, I did not fall asleep during the third and fourth versions as the anticipation of seeing Keith Richards on the big screen was enough to keep me alert.) ……..

 

….Later, of course, I realized all of those issues were not hypochondria but the early symptoms of my strange disease. The peeing constantly was from bladder issues associated with MS.

The fatigue stemmed from my body trying to fight its own immune system that was causing the illness.

The aches were from spasticity, which means that my muscles were going spastic.

The mood swings probably weren’t about MS, but let’s blame MS anyway.

The weird stomach ache was a symptom called an MS hug. A hug? That’s what my bizarre, painful, twisting, almost hospital-going, practically ruining the Portuguese Festival illness event was, a hug sent to me with care directly from the huge MS PAC-Man-looking antibodies in my body.

I thought my appendix was bursting, my friend thought I was pregnant, my cousin thought I needed to go to my grandmother’s and take one of her laxatives, his girlfriend thought I should consume weeds. But no, it was one of many hugs. Hey MS, hug this!…..

…..Even dear friends began to think nothing was wrong with me. Well, that was just fine, until one of the symptoms did come up. Then I was making excuses. If I felt unable to do something, they thought I wasn’t trying hard enough. When I tried to explain why it was tricky, then I was using MS as an excuse.

“You can’t blame MS for everything,” I was often told in regard to my exhaustion, clumsiness due to lack of balance, and my inability to focus on something. I laughed it off when it took me longer to get a joke, or when I had a hard time trying to figure out what was being said when words were spelled out instead of simply stated.

If one of my friends asked me in front of her young child, “Have you seen a-s-s-h-o-l-e lately?” I never got what she was saying on the first try. I had to piece it together in my MS brain.

 

We would be onto a whole different conversation before I figured out what a-s-s-h-o-l-e spelled and which a-s-s-h-o-l-e that friend was referring too. The irony of being an honors college graduate with a major in English who suddenly couldn’t spell a-s-s-h-o-l-e was not lost on me…..

…..Dr. M and I eventually decided I should go to a Vocational Rehabilitation Specialist. At the orientation they told me to think up my dream job and let them know when I met with the counselor what it was and they would help me find it. So I did.

I was writing a lot and thought maybe they knew of a paper where I could freelance and/or a company that needed somebody part time to write their newsletter. I could do that. The counselor told me starving writers were a dime a dozen, so I obviously needed to forget about them helping with that type of work.

What else did I want to do?

“Ummm, how about working in reception? I’m pretty friendly.”

She told me I didn’t need her help to get that job. Probably true, but I didn’t know how much I could make with my state insurance and needed her input on what people with relapsing- remitting MS do for work, when they have symptoms that come and go. In orientation, they had said they worked with people with MS all the time-they must know how people like me managed.

“Oh, you’ll have to figure those things out on your own.”

She was very nice but I was very confused and frustrated and not sure any more what I was doing there. After many calls and different answers and more hold time and confusion I did learn that if I got federal assistance and a part time job, I could not make more than forty dollars a month or I would lose my health insurance. But I wasn’t angry. Just frustrated.

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And now for our goodbye to season 17 of Dancing with the StarsJack Osbourne won! OK, officially, he didn’t take home the Mirror Ball Trophy, Amber Riley and Derek Hough did. And well deserved it was- they were fantastic!

But Jack went all the way, coming in third and dancing like he never thought he could! Who would have thought that without any experience at all, he would take his spirit and determination this far! And he happily brought all of us along the journey with him.

Way to go Jack! May you spend some time resting your achy feet and on to the next adventure!!!

 

 

 

A Few of My Favorite Things

A little MS gratitude just in time for Thanksgiving

 

Hello friends-  this blog is a repeat as I am kind of out of town and thus, a little too out of my mind to come up with a new blog.  At least this repeat has some holiday relevancy.  Even if you don’t like reading repeats, please look to the bottom for a Dancing with the Stars update and a little reminder.

For some reason, I can’t get the above song out of my head even though I have usually found it slightly annoying. It is kind of a Christmas song, although not written as such. Since I love autumn so much that I cherish taking my cool weather holidays one at a time, I’m not sure why this song is hanging around my lesion filled brain.

Perhaps it is because next week is Thanksgiving and the above reminds everyone of what what’s her name from that movie is grateful for. Thus, why isn’t A Few of My Favorite Things thought of as a Thanksgiving song?

 

I have so many things for which to be grateful, that I couldn’t possible name them all or fit them into a song. And trust me, mittens and kittens are not at the top of the list.

Just thinking about Thanksgiving makes me grateful.

For example, if my small family winds up at my place on the holiday then I am super grateful that the local grocery store sells what I like to call ‘turkey in a box’; a complete holiday dinner you can just throw into the oven all prepared and no one is the wiser.

I am grateful for pumpkin pie- how could I have possibly left out pumpkin pie on my prior Pumpkins, Pumpkins Everywhere post?

I am thankful that Thanksgiving is a day where it is perfectly appropriate to eat too much and veg out. It is actually un-American not to do so.

And I am thankful that even the fruits and veggies cooperate on this day and aren’t too obnoxious- think mashed potatoes, stuffing with celery, cranberry sauce, candied yams, pumpkin pie. I know, again with the pumpkin overkill.

 

I am grateful for the knowledge that Black Friday is just a scam of hype and deals that aren’t really deals, thus allowing smug people like me the luxury to stay home, eat too many leftovers and veg out for one more day.

But this is a multiple sclerosis blog and so if I am going to list things that I am grateful for, or a few of my favorite things, I should focus on MS. What could one possibly find to be grateful for about MS?

Nothing really.  Absolutely nothing.

But in thinking about my last few years living with this illness, I did miraculously come up with some things associated with MS to be grateful for.

For example, while I am not thankful to have to give myself shots, I AM very thankful that they seem to be working. And I am thankful for the extra fat cushion I have to soften the shot just a bit. I still HATE doing them though.

 

I am thankful to have a knowledgeable, kind, patient, young, handsome neurologist on my side as I battle MS. I am NOT thankful that he happens to be married but I guess you can’t have everything.

I am grateful that my primary doctor diagnosed my diagnosis quickly without having to do a spinal tap as I have heard they are just horrific. She just had me electrocuted and shot through a tube a couple of times and we were good to go.

These bits of MS gratitude did not seem grateful enough. I started looking over my blog posts for more help and realized that I started this blog over two years ago and it has since grown from a whenever I felt like it post, to a once a month post, to twice a month post and then to a once a week post. (Thank you to multiple sclerosis for continuing to give me enough material to keep this wacky blog going- oh wait- maybe not….)

In my past blogs there were other examples of MS things I had to be thankful for. In the post Stormy, Sleepy Sandy, I talk about my bladder alarm clock screaming at me to get up. I am thankful that the alarm clock part of my bladder is still working. It has been quite a long while since I have had ‘an accident’ and I would like to keep it that way for as long as possible.

 

I am thankful that kale is considered an awesome veggie for MS’er’s as well as the world as a whole, and I can sneak its precious nutrients into my all time favorite comfort food, kale soup- see post Kale, the New Frontier.

I am thankful that due to cognitive difficulties that come from MS, when I do something stupid I have a disease I can totally blame it on (Stupid MS).

While fatigue and clumsiness are constant companions, and I am may not move so gracefully going about my day- No Moves Like Jagger but Smooth Like Montel and Chop Their Happy Little Heads Off posts- I am grateful that I am still moving. Being able to move about without any help is definitely something to be grateful for, even if you do move like a slug most days.

And while an eye exam discovered a new disgusting condition, Oily Tears and All, I am grateful it didn’t show any significant damage as yet to my optic nerve. I will be able to continue reading the numbers on my bedroom scale and the milligrams on my medications going up, up, up a while longer…

And on this sappy holiday of Thanksgiving, I must say I am thankful to God who is the real being responsible for the above. My health, my sense of humor or lack thereof depending on your opinion dear reader, my friends, my family and everything good comes from HIM. Fortunately for me, HE also enjoys a good joke or two. HE absolutely appreciates a rip roaring laugh. I think that may be why he created us in the first place!

 

DWTS Moment- It happened friends, it really happened!  Jack Osbourne made it into the finals of Dancing with the Stars!

It didn’t come easily as it was a difficult week for him.  In a very emotional letter on Facebook, and on the show, Jack discussed his tough week with MS relapses.  He described the many symptoms that attacked that week and how they affected not only him, but people who rely on him, like his dance partner Cheryl Burke.    Cheryl didn’t totally understand but she did her best to stand by her partner  and remind him that “it’s just a dance competition.”

I so admire Jack Osbourne and all that he has done on this reality dance show.  Not because he is famous.  And not because he has MS, but in spite of it.  Jack reminds us of the unexpected ugliness that can it rear it’s head on our fight to follow our dreams, and of the ways we can still succeed by adjusting.  He also reminds the rest of the world that while our world may look pretty, inside it ain’t always so.

And to top it all off, he is a kick butt dancer!  Way to go Jack!

 

I am not posting the voting methods today as I’m not sure if you can vote this week.  Yes, I have watched every season since the show started and so I should have this info down but hey, I have MS.

Friendly Reminder-Only one week left to enter my contest!  Please enter by sending me a message in the contact section of this website and/or by sending a private message to my Facebook page Yvonne desousa.com

 

Next week I will announce the winner/winners and include excerpts of the chapter from my soon to be released book, MS Madness: A “Giggle More, Cry Less” Story of Multiple Sclerosis the answer is based on. Please see my last blog on 11/15 for the contest rules.

Here is the question-

Chapter 19 (Hey MS, Hug This) is one of the more serious chapters of MS Madness and discusses one of the most frustrating aspects of living with multiple sclerosis.  What is that aspect?

Hint- it is not the MS Hug.

A Happy and Healthy Thanksgiving to all!

 

 

Beating Up the Bully, Anew

An MS blog redo, a Mad contest, and our boy Jack

Today’s blog-

Bullying is bad, very bad. Violence is bad too. Never, ever be violent. It is mean, the man upstairs doesn’t like it and legal fees are expensive.

I was never a bully when I was younger. Fortunately, I was never bullied either. I was simply a go with the flow type of kid. Funny then, how as an adult, I so enjoy beating up on a bully even though I am basically nonviolent.

 

In my twenties, I took my nephew to a zoo with an awesome play structure. He was five. The structure had a Tarzan-like swing where kids reached up to grab a bar and then could zip-line from one side to the other. I noticed that Drew had been at the head of the line for a while, with a bunch of little kids behind him. The line was not moving.

I went over to investigate and saw that while my nephew and the other kids waited patiently, a taller, older girl, probably at the cruel age of nine, was grabbing the bar first and swinging in a taunting manner. I watched her do this several times.

 

Finally, using my adult height to the utmost advantage, I leaned over her and grabbed the bar just as she went to reach it. It was all she could do to steady herself and keep from falling.

I glared the meanest bully look I could come up with and said, “it is HIS turn now,” and handed the bar to Drew.

She looked at me terrified and ran away. I let Drew take a few turns and then I passed the bar to the next short kid in line.

 

One might say that I shouldn’t be picking on someone younger than me and/or that I missed an excellent teaching opportunity to show the brat, oops, I mean sweet little girl, a wonderful, life altering lesson. But I must admit, I still get a sadistic moment of glee when I think about it.

Does that make me bad?

What does this have to do with multiple sclerosis? Well, I see MS as the ultimate bully.

The meanest playground stalking, slang calling, tear inducing, skinned knee causing bully around. And that sadistic moment of glee encompasses me again when I feel like I am beating up on it.

 

Since violence is wrong, (and really, who would I be violent towards?) my bully beating weapon of choice is a giggle stick.

Soon after my diagnosis I decided that whenever possible, I would laugh when MS was trying to make me cry. It isn’t always possible of course. Sometimes the meanest bully actually bites.

But when I can taunt MS by making fun of it, it is sadism of the righteous kind.

 

Unfortunately, MS has given me way too much material to work with. I have a lot of giggle stick beating to do. So much so, that I wrote a soon to be released book just to beat up on MS some more.

It is called MS Madness: A “Giggle More, Cry Less” Story of Multiple Sclerosis.

 

Today’s contest-

To help all of you get as excited as I am about the book-ok, that may be a stretch as I am really, really excited- I will be featuring a contest each month until the MS Madness February release date.

Here are November’s contest details-

 

1. The contest will run from today, 11/15/13 to midnight on 11/28/13.

2. The winner will be announced in the 11/29/13 blog which will also include excerpts from Chapter 19 of MS Madness which is titled Hey MS, Hug This!

3. The first correct answer to the contest question will win a free autographed copy of the book along with a $10 Amazon gift card to use to buy more copies of my book. (Ok kidding. The winner will still get the Amazon gift card but I don’t think that I can legally insist that you use it to buy more copies of my book. I can only strongly suggest what an excellent use of the gift card that would be!)

4. If more than one person gets the answer to the contest question, the next five correct answers will get a free ebook.

5. You MUST enter by either private messaging me here in the contact section of http://yvonnedesousa.com/contact/or by sending a private message to my website Facebook page Yvonne desousa.com If you chose to enter using my Facebook page, please like it if you have not done so already.

 

6. Your answer must be specific.

7. Only one guess per person allowed.

8. Regular followers of my blog have a slight edge as the contest is based on book trivia that you may or may not be able to figure out from things I have posted about previously.

9. Friends and family are eligible to enter as long as they don’t actually know the answer. That leaves my writing group out. Ok, they can enter the contest but they just can’t win!

10. If you don’t win, don’t fret. There will be additional contests in December and January.

 

Ok- are you ready for the contest question?? Here it is-

Chapter 19 (Hey MS, Hug This!) is one of the more serious chapters of MS Madness and details one of the most frustrating aspects of living with multiple sclerosis. What is that aspect?

Hint- it is not the MS Hug.

Thank you for entering and good luck! Please don’t forget to submit your entry via private message.

And now, for-

Today’s DWTS moment-

 

This is a brief moment as there is nothing much to be said except-

Holy Dancing Jack! Semi-finals, here he comes!!!!!

I see a possible Mirror Ball Trophy in Jack Osbourne’s future but he can’t do it alone.

 

Vote for Jack Osbourne and his partner Cheryl Burke by calling 1-800-868-3402 up to 60 minutes after the show on Monday nights or by logging onto ABC.com or Facebook.com/votedwts up to 24 hours after.

 

Note- this actual blog post was originally published in May 2013 on MSRelief.com

 

 

 

 

 

 

 

 

Falling Backwards

An up close, in depth, comprehensive look at multiple sclerosis “cog fog”

 

First things first with today’s blog post- please don’t sue me. I did not come up with the name of multiple sclerosiscog fog.” I found it on the internet on two different sites and so I have no clue who to attribute this clever phrase too.

But it certainly fits to describe when your MS cognitive difficulties collide with ongoing brain fog. Thus I am using this expression to help others understand one aspect of “cog fog.”

And yes, I know that I said this was a comprehensive look at “cog fog” and yet, I am only focusing on one aspect of it.  That is lesson number 1. When you have “cog fog” you often have no idea what you’re talking about.

Anyway, tomorrow is the day when we will have to change our clocks. This is incredibly stressful for me. While autumn is my favorite time of year and I actually don’t mind winter, this clock changing thing is horrible.

 

What is it all about anyway? Everyone grumbles and complains about it getting darker earlier, (I think that is what happens.) Why can’t we just leave it to the mighty guy upstairs to tell us when it is time to settle down for the evening and put our PJ’s on? Why stress about it and then try to direct the hour of the setting sun?

I have adorable little relatives in the western part of the country who don’t change their clocks; which is a good thing because they don’t know how to tell time. But their parents and the rest of their state don’t change them either.

dudes

This makes the time difference even more confusing when it changes in my area twice a year. I can’t even remember the time difference once a year. Is the whole concept of some parts of the country manually changing the time while other parts don’t just a huge conspiracy to keep me from calling the little ones hourly just to hear them say, “I wub you, auntie.”

The next stressful thing about this process is getting it right. I can never remember if I am supposed to move the clock an hour forward or an hour backwards. Right up until the minute I do it, I am still confused.

Plus, they “the official people in the know,” say you should change the clock at midnight. What if you are not up at midnight?

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Here’s what happens. I call my mom twenty times that evening and ask her to remind me what I am supposed to do. Exasperated, she will say, “Yvonne, in the fall you move the clock back one hour. So if it is midnight, you would move the clock back to eleven. In the spring you do the opposite.”

“Ok, I will write it down so I don’t forget.”

And then I will forget to write the info down and will call her again.

I try to always do the right thing when I am supposed to do it. So to be prepared, I turn the clocks back one hour before I fall asleep, whatever time that happens to be.

clockface

Then I wake up for a bathroom run and to make sure I am not confused in the morning, turn the clock back an hour again. When I wake up for my crack of dawn bathroom run, I don’t remember if I have changed the clocks already and if I did, did I move the hands back one hour, or ahead one hour? And was that the direction I was supposed to move them in?

The sun outside doesn’t help because the whole point of changing the clocks is to change what time the sun does its sun thing…

To make matters even more confusing for my MS brain, in this new electronic age some things change themselves. I can just never remember which.

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The cable box has a time different from my clock- which is right? My cell phone has an altogether different time, does it change itself? How does it know what the actual time is?

What about the microwave? Who tells the microwave what time it is? And whoever does that, why don’t they tell the stove the time as well?

Next in sorting this mess out, I turn on the TV news. They will definitely have the right time.

Except, what time zone are they broadcasting from? Are they in Eastern, Central, Mountain, Pacific, Oceanic, Astrophysic or what? And does that time zone change its clocks back or forward or not at all?

You would think I could rely on the local news, they MUST have the accurate time. Except I just heard that our local news stations was bought by Fox Television and aren’t they in LA?

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So you without MScog fog” can see how something relatively simply to the rest of the world (or state or time zone or whatever,) can become completely overwhelming to someone with MS. After stressing about this over and over I wind up calling my mom in the morning to see what time it is.

“It’s 6AM and it’s Sunday. Go back to bed!” she abruptly and groggily tells me.

“Is that 6AM yesterday time or 6AM today time?”

Finally, someone helped me to see the REAL importance of this event.

“The fall time change means you get an extra hour of sleep..”

Now THAT is something I can appreciate.

I love sleep and I will take all the extra hours I can get. In order to better appreciate the extra sleep this year, I have decided not to change anything, at least not until late the next day. At that time I will call someone and ask them to tell me what time it is.

Can someone please give me their number? Funny how the operator tells me my mother’s number has been disconnected….

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And now for our DWTS moment- Thank you, thank you, thank you Jack for finally mentioning the fatigue! I have been waiting all season for you to bring up MS related fatigue and how that has got to be affecting you. Of course, when you did, your partner Cheryl Burke did not get it. BUT, she did say the key words, “you have to tell me how you feel so we can be on the same page.”

 

Oh, wouldn’t it be wonderful if all the people in our lives were to put that statement out to us and really mean it? Cheryl must have really meant it because she and Jack then went on to dance an incredible Jive!

And the biggest shock of the evening- Ozzy looked like he actually knew what was going on!

Memorable MS quote of the show- “I feel like I am turning into a zombie,” Jack.

I can relate Jack; I can definitely relate.

 

Vote for Jack Osbourne and his partner Cheryl Burke by calling 1-800-868-3402 up to 60 minutes after the show on Monday nights or by logging onto ABC.com or Facebook.com/votedwts up to 24 hours after.

Image courtesy of Grant Cochrane/FreeDigitalPhotos.net

Image courtesy of digitalart/FreeDigitalPhotos.net

Image courtesy of luigi diamanti/FreeDigitalPhotos.net

Image courtesy of digitalart/FreeDigitalPhotos.net

 

 

 

MS Horror Theory

A multiple sclerosis Halloween blog

ID-100207832Halloween is fast approaching and that fact, along with MS and a visit from an old friend, has gotten me thinking about ghoulish things. And by ghoulish I don’t mean the age of me and my friend, although that is frightening in and of itself.

My friend is one of those that has been a friend forever, although we aren’t able to get together regularly. But when we do, we can chat away a whole afternoon without realizing how much time has passed. If you have one friend like that, you are lucky. I am fortunate to have a few and am very grateful.

This friend reads my blog and so in the spirit of my Pumpkins, Pumpkins Everywhere post, she brought me a pumpkin and some Hershey’s Pumpkin Kisses-yummy!

We were chatting and she suddenly said, “wow, how can you take that? Doesn’t that drive you crazy?”

 

I had no idea what she was talking about and said so. What she was referring to were the flashes of light that pass by the window in my new rental.

The rental happens to be on a busy street and I have blinds on the windows which I often leave open for light, but not all the way up as the glare is too much. When a car passes, it gives off a spark of light.

I was relieved she saw this and mentioned it to me. I had been living with these sparks since moving in but blamed them on another symptom of MS, (what I always blame things I don’t have an explanation for on,) or, ghosts. Ghosts didn’t make much sense as this building is fairly new but my MS brain didn’t put together the car/window connection.

Speaking of ghosts, she then brought up a theory about my All Aboard post, the post where I describe regularly hearing a train that doesn’t exist. After asking several questions, she determined I really was hearing a train.

“But didn’t you read my blog? There hasn’t actually been a train in these parts since 1938.”

“The bike path went right through the backyard of your old rental and isn’t too far away from here. You know, the bike path known as the Cape Cod Rail Trail? What you are hearing could be a ghost train,” she said sensibly.

 

It occurred to me that my friend was right AND she had solved the mystery! The famous local bike path was built over the old train tracks. What a relief. I wasn’t crazy and the train sound wasn’t yet another MS medical mystery. It was just a ghost!

This shouldn’t have surprised me. For a while now, I have compared my MS fog state to that of being a zombie. (See a former halloween blog titled Scary Brain, Scary Movie.) Aren’t ghosts and zombies closely related?

The more I pondered the ghost explanation the more it made sense. Especially since, I realized, ghosts have a lot in common with multiple sclerosis.

 

Ghosts are very popular during halloween which is represented by the color orange. Orange is the color that represents multiple sclerosis.

Ghosts are very scary at best, absolutely terrifying at worst. Just like an MS diagnosis.

Ghosts can hang around you for a very long time before they bother you enough for you to pay attention to them. Just like MS symptoms before an MS diagnosis.

Ghosts can take various forms and can affect people differently. Sound familiar?

 

Ghosts can be invisible and so people often don’t believe you when you tell them you saw a ghost. MS symptoms can often be invisible and so people often don’t believe you when you tell them you have MS. “But you look so good,” they say.

Ghosts hang around some people but not others and no one knows why. MS attacks some people but not others and no one knows why.

In spite of multiple studies and expense, there is no scientific solution that will get rid of ghosts.

In spite of multiple studies and expense, there is no scientific solution that will get rid of multiple sclerosis.

 

As halloween approaches, how is any of this helpful to me and my other MS friends?

What you can’t blame on multiple sclerosis, blame on the supernatural! You are then covered; people are horrified by both.

Now for our DWTS moment-

jackpasoJack danced an incredible Paso Doble this past week, a dance that recreates the viciousness of a bullfight. In rehearsals, his toughest job was finding the right emotions to want to kill his partner in the dance. He finally nailed it but I wonder if he did it by mentally changing his partner from Cheryl Burke to a bull to MS? That might have been what made it easier to bring her down.

Due to technical difficulties last week, there will be two eliminations on 10/28 so your vote is more important than ever.

Memorable MS quote-

“crotch forward,” Bruno.

 

Vote for Jack Osbourne and his partner Cheryl Burke by calling 1-800-868-3402 up to 60 minutes after the show on Monday nights or by logging onto ABC.com or Facebook.com/votedwts up to 24 hours after.

Whether you are a ghost or a zombie this year, Happy Halloween friends!

 

 

Things That Go Ouch In The Night

MS weirdness, MS dancing, MS news and a favor

 

If you are like me, then you are used to unexplainable MS aches, pains, and strains. There are so many that I have stopped trying to count. And I have definitely stopped trying to figure out what causes them.

I just take one (or two,) Aleve tablets (my personal favorite of the over the counter meds,) and try to move on, perhaps whinnying or complaining if I also happen to be super grouchy that day. (Please see my prior post about mood swings titled, Call Me Oscar.)

And, so you don’t worry, I will tell you that I do know relying on Aleve is bad for your tummy; hence why I have prescription heartburn medicine that I take along with it. (Why isn’t it called tummyburn?)

 

That’s the way MS rolls; one drug takes care of one symptom but causes another, and so you take another drug to combat that symptom and so on and so on and so on…

But back to the aches, pains, and strains. I am more fortunate than some of my other MS friends in that the pain MS throws at me isn’t too terribly horrible. But because it is MS, it insists on being weird.

 

Just so my brain doesn’t get too complacent, multiple sclerosis decided to toss something new in the mix, just to shake things up. For the last several nights, when I wake up for one of my many, many middle of the night trips to the bathroom, I awake filled with all kinds of aches, pains, and strains. Stabbing sensations in my legs, throbbing feet, headache, sore throat, brutal ear aches- in both ears no less- or any combination thereof.

I tell myself that this is not MS. I must be coming down with something (virus, cold, fever, infection, malaise, etc.) and in the morning I will make an appointment to see my doctor. And, also luckily for me, MS fatigue overtakes MS weirdness and I fall back to sleep.

 

When I wake up in the morning, I (of course,) run to the bathroom again. I take my thyroid pill, (a whole separate diagnosis, a whole separate drug issue,) and since I can’t eat or drink for 30 minutes afterwards, I go back to bed. In that time the aches, pains, and strains seem to go away. I become convinced I dreamt the whole body of issues. Too often the headaches stick around and I will take my Aleve, but otherwise, the virus seems to be gone.

This has been going on for several days. I’m a pretty intense dreamer- am I dreaming the whole thing? Does the dream me have an ear infection or strep throat but the awake me is healthy?

Is it a mix- are some of the symptoms MS related and the others viral? But I am on an anti-viral medication (for fatigue-figure THAT one out,) so how does that work? Do my meds run out in the middle of the night and that is why everything comes at me then? If so, how come this just started recently when I have been on all of this same stuff for years?

 

Since it happens at night, and night is when the monsters come out, is this just a medical monster mash designed to help me get ready for Halloween?

You might suggest I visit a doctor to discuss this but how can I go see a doctor when by morning I don’t have any symptoms for him to look at? Am I going crazy? How else can I explain this latest weirdness?

Oh wait, that answer I’ve got. If it’s medical and it’s weird, it must be multiple sclerosis….

 

On to DWTS– what an incredibly beautiful and emotional night it was. I have been a fan long before Jack Osbourne joined the cast and I think this night of the stars recounting their most memorable years was the best ever. But Jack discussing his MS diagnosis only 2 and a half weeks after his daughter was born was beyond touching. His raw emotions as a father combined with his fears for his future health brought the ballroom to tears. He then danced a flawless waltz.

I was so moved I almost forgot to vote. Luckily, I came to my senses and managed to get my votes in!

 

Memorable MS quotes of the evening-

“If you don’t have bad, then you can’t appreciate the good,” Jack.

“Your hand sort of goes in a peculiar way,” Len.

“You even managed to get your bum under control,” Bruno.

Vote for Jack Osbourne and his partner Cheryl Burke by calling 1-800-868-3402 up to 60 minutes after the show on Monday nights or by logging onto ABC.com or Facebook.com/votedwts up to 24 hours after.

Now for the big news, followed by a big favor! It’s official, the title for my upcoming book is-

MS Madness!

A Giggle More, Cry Less Story of Multiple Sclerosis

It is scheduled to be released in February 2014, just in time for National Multiple Sclerosis Awareness Month! I can’t wait to share with all of you the story of the several months before my diagnosis and the year that followed, a story told with honesty, frustration, inspiration and, of course, my own unusual sense of humor.

If you haven’t done so already, please consider liking my professional page on Facebook, Yvonne deSousa.com where I will regularly post status on the release date, preorder information, book signings and a contest!

Thank you all for your amazing support!

 

 

 

 

 

 

Use Your “I” Words, Baby!

A Multiple Sclerosis Vocabulary

Some people say that good things come from bad. Many others say that is crap. I’m not about to earnestly debate this argument as my brain is just too fatigued to give it much thought. But I will honestly say that one thing good that arose from my multiple sclerosis diagnosis was the increase of helpful vocabulary words beginning with the letter “I.”

Before MS, if someone were to ask me to quickly name a word that starts with the letter “I,” I would have to think for a few seconds. Then I would say “Indian” which is no longer politically correct, and since Native American doesn’t start with the letter “I,” would be wrong anyway.

If I was given more time I might come up with igloo or iceberg, maybe iguana, but I would really have to think for a bit. Pretty sad since I was an English major in college.

But since MS, I know many words that begin with the letter “I” and some are actually helpful in my MS world.

 

And no, I do not mean “injection” which is technically helpful in a healthy way but is definitely not helpful in a real life way.

Nor do I mean “interferon” which I had never heard of before MS, and do not know what it means, but know that it is printed on my box of “injections” right over the words “Chinese hamster ovary cells.”

 

Nor do I mean “infusion” which I am sure I had heard of before MS but never real thought too much about.

The “I” words that have been added to my post diagnosis lexicon and which are truly accommodating are “ish” “ing” and “icth.”

Let’s start with my favorite-“ish.” I love “ish.” “Ish” rocks my world and absolves the normally precise me from all responsibility.

“I’ll be there around 9ish,” can actually mean, “no I won’t, but I’ll give it a good try.”

Or, “I have no idea what time I will get there and cannot even begin to try to rationalize how my morning will proceed and how fast I might be moving, but I will roughly aim for some time around 9 in our particular time zone.”

On a stretch it can even mean, “We didn’t state a specific time, did we?”

 

The reason why “ish” is so good is because not only are you not committing yourself in any way, the ishness of “ish” can be broken down by several factors. My view of “ish” is not your view of “ish” and 9ish can be anything from 7 to 11 and there is nothing anyone can do about it!

It doesn’t just work on time either. When someone asks my age, “30ish” or “how often do you exercise, “Oh often. I try to exercise once or twice a week, ish.”

Do you see the beauty of “ish?” I never appreciated it until my diagnosis but I am thrilled to have “ish” to help me out.

“Ing” is great to use when I try to describe symptoms that are totally indescribable. My ears are making this “ringing,” “buzzing,” or “clopping” sound. My fingers are “aching,” tingling,” and “vibrating” all the “freaking” time. My foot is “dropping,” my legs are “weakening” my head is “pounding,” my brain is “fogging,” my eyes are “blurring,” my skin is “itching,” my stomach is “twisting” and my bladder won’t stop “going.”

 

“Ing” doesn’t let me off the hook as much as “ish” but it sure makes it easier to explain what is going on in my body even when I no clue what that is.

But if I am really too tired to come up with an appropriate “ing” word or there are just too many too sort out, then the best word is “icth.” “Icth” just sums it all up.

Some days, you are just not with it and MS is doing its best to do you in. Well meaning people may say to you “well, tell me, specifically, how do you feel?” Sometimes you just don’t have the specific words they need to understand. So I just say I feel “icth.”

 

It’s important to let out a little breath when you say you feel “icth.” If you are not sure about “icth,” then please allow me to tell you it is the next step up from “ick.” Anybody can feel “ick.” But when “ick” is not encompassing enough of your overall ickiness then you must use the word “icth.” “Icth” is “ick” times twenty.

Not only does “icth” describe your ickiness combined with all your other symptoms combined with your overall exhaustion, it also says “stop asking me how I feel because I don’t have energy to explain it to you!”

MS friends, far too many times, “icth” is my favorite word. May you not have to say “icth” too often. But if you do, then I’m glad “icth” is available for you too.

Now for our DWTS moment- Holy Quickstep! My legs started “shaking,” “throbbing,” and “whinnying” just watching Jack do that dance.

 

Memorable MS quote of the evening- “that’s not getting it doner,” Jack.

Have you been voting???

Vote for Jack Osbourne and his partner Cheryl Burke by calling 1-800-868-3402 up to 60 minutes after the show on Monday nights or by logging onto ABC.com or Facebook.com/votedwts up to 24 hours after.

******So sorry to see Valerie Harper leave the dance floor this week. Her strength and attitude are an amazing inspiration. Carry On Valerie, Carry On…******

 

 

All Aboard!

Multiple Sclerosis crazy

 

                                                         Riding on a train

Come and ride with me

Let’s look out the window and see what we can see

 Friends, do you know this song?  I’m not even sure that it is an actual song, like with a copyright and royalties and stuff.  I just know it is the words and music that blasts from one of my nephew’s favorite toys.

This nephew, his brother and his parents live very far away and so I don’t get to play with the train often.  BUT, I will be seeing all of them (even the train toy,) next month so perhaps that is why the train song is on my mind, annoying though it may be.

 

But I doubt it.  I think the real reason this silly song is hanging around has to do with multiple sclerosis.

Since way before my diagnosis I have had weird things going on in my ears.  My first neurologist told me four years ago that this was not likely MS related.  But now I read that strange ear stuff is yet another of the many strange symptoms of MS.  Aches and unexplained noises are part of the MS/ear connection.

I wanted to research this a bit to make sure that my ear noises were normal and of course, they are not.  What I hear is a train when there is supposedly no train.

 

It started in my old neighborhood, the one I lived in for almost six years up until about six weeks ago.  For a while, once a morning, I would hear a train passing through the woods behind my house.  This was strange as there hadn’t been a train in these parts since 1938.

But things change of course.  A local business must have re-built the tracks in order to ship goods in and out of the area.  My town was pretty small and not at all commercial, but I had heard that there was a coffee retailer nearby that did all kinds of things with coffee beans.

 

Maybe in fear of the feds cutting postal service, they started a coffee train.  That was what I assumed anyway.

Just to make sure, I mentioned this to my neighbor who had lived in the area even longer than I had.

“So, what’s up with the train I hear every morning?”

“What train?”

“Don’t you hear it?  It goes by behind our houses constantly.  I hear it all the time.”

“Ah, the only thing behind our houses is ponds, lakes and trees.  There hasn’t been a train in these parts since 1938.”

 

I figured my poor neighbor must have lost it.  Or, she had bad hearing.

This was confirmed when I moved across our little town, about five miles away.  Sure enough, there was the train.  To prove I knew what I was talking about, I decided to write down the time that I heard it and then I might be able to figure out its schedule and hence, its story.  Then I didn’t hear it for days and by the time I heard it again, I forgot to write down the time.

Recently, I was at my mom’s house, the next town over from my little town when I heard the train again.  I pointed it out to her.

“Train, what train?  There hasn’t been a train around here since at least 1937, maybe 1938.”

“But I just heard it.”

“I didn’t hear a train.  I heard a car horn several minutes ago, but no train.  I think you may have lost it,” my mom told me.

I wanted to prove I wasn’t crazy so I started researching the train online.  Nothing.

So then I did what I always do when something confuses me and makes me want to pull my hair out, I blamed MS.  Online again, several articles describe ear problems with MS.  But no train noises.

 

Filled with frustration, I did what I do best.  I pulled the covers over my head and sang the toy train song over and over.

I refuse to believe that I am crazy.  It must just be a crazy train

 

Mental wounds not healing

Life’s a bitter shame

I’m going off the rails on a crazy train…..

Crazy Train

by Osbourne, Rhoads and Daisley

So speaking of Ozzy, now is a good time for our Dancing with the Stars moment.  Jack Osbourne has made it to week four in season 17.  The Cha Cha was not his best dance.  As a long time fan of the show I can offer three reasons why that may be-

  1. The Cha Cha is just not for him
  2. He had an off night
  3. Partner Cheryl Burke may have done some bizarre choreography.

Whatever it was, off nights happen to all the stars at least once in the season.  I’m just thrilled he is still in and doing such a great job.

I do have a suggestion however.  Jack, please share with the world what the intense rehearsal schedule is like for you.

 

Yes, I know it is often a fine line between describing our MS symptoms and complaining about them, and you don’t want to be seen as any less of a competitor than your fellow stars.  And I am sure you don’t want to sound like you are asking for sympathy in any way.

But you being in the competition has become a springboard for a conversation about MS, and not always in a good way.  Please help your fellow MS’ers with the conversation by offering some realities on how you deal with life, a heavy dance card and MS.

Fun quotes of the night-

“I’m an insecure pimp, a scared pimp.” Jack Osbourne

“Your arm does all these strange amorphous things.”  Judge Carrie Ann Inaba

Please keep voting-

 

Vote for Jack and his partner Cheryl Burke by calling 1-800-868-3402 up to 60 minutes after the show on Monday nights or by logging onto ABC.com or Facebook.com/votedwts up to 24 hours after.

 

And finally, speaking of crazy, a book (my book- now that’s crazy!) is in the works.  I have been working away with an editor and a publisher and we are aiming for a release date of mid-February 2014.  And the big news, we are close to coming up with a title!

I will keep you posted and hope you will consider checking the book out….  If you like my blogs, you should love the book.  I have been working on it and savoring every word tediously for over three years now, so it’s got to be good, right?

 

 

Pumpkins, Pumpkins Everywhere

An MS’er acknowledges autumn, again

 

******This blog was first published last year.  But the sentiment is so relevant, I had to post it again.  Plus, it was a busy week.******

I have said it before and I will say it again, I love fall!  And again, I really, really love fall!  It is my absolute favorite season by far!  When I tell grouchy people this they say, “ya, well, fall means winter is coming soon.”

To me that is ok; winter is my second favorite season!

I love fall so much that, MS fatigue aside, I don’t even bother to sweep up the dead leaves that blow into my front doorway every time I go in or out- they are just awesome fall decorations!

Here are some reasons why I love fall- cooler weather, cool breezes, barely any humidity, cooler weather, no bathing suits, cooler weather, and pumpkins.  Pumpkins are definitely a great part of fall.

 

I am not very artistic, so carving pumpkins has never been my thing.  But I like looking at carved pumpkins.

Mostly, I love the essence of pumpkins.   So much so, that I have pumpkin room deodorizer and a vanilla pumpkin scented candle.

I thought pumpkin was a vegetable but it turns out it is actually a fruit.  The confusion comes from the fact that it is in the squash family but it is still just a fruit.  That’s ok.  It is a healthy thing I actually like.

Come fall I seek out pumpkin everything.  Do you know that Dunkin Donuts makes pumpkin coffee, pumpkin munchkins, and pumpkin donuts?  I don’t even like coffee but throw some pumpkin in it and it is yummy!

 

Recently I discovered that Dunkin’s also offers pumpkin cream cheese.  It is beyond describable in its deliciousness. Then I learned that you can buy pumpkin cream cheese in the grocery store and have it at home whenever you like!  I considered this but reasoned that the nutritional benefits of the pumpkin paled in relation to the calories in the cream cheese and thus, didn’t buy it.

The grocery store also had pumpkin ice cream but the container was huge and that was just a bizarre mix.  Pumpkin is a fall food and does not belong in combination with ice cream, a summer food for when it is super hot out.   Pumpkin belongs with hot things, like my beloved tea.

I learned from Facebook about Hersheys Pumpkin Spice Kisses but told they were hard to find.  I went on a quest to find them that took me two and one half hours away from home and employed the assistance of a friend.  We didn’t find them.

 

Truth be told, I was in the area anyway and didn’t make the long drive just for the kisses.   Lucky for me, two weeks before Halloween, they appeared in a local pharmacy and they were scrumptious.

I have heard that Pringles will be releasing Pumpkin Spice potato chips soon and if the Pringles factory were nearby, I’d be waiting at the door!  I wonder if the Cape Cod Potato Chip factory has any direct links to the Pringles factory?

Reese’s even makes chocolate peanut butter pumpkins but I must admit, I’m not sure how much real pumpkin is in them.

 

Please don’t think I have fallen off my ‘get fit’ plan, I am just trying to incorporate my favorite fall flavor into it.   I hadn’t used my Montel Williams Healthmaster Elite in a bit and thought maybe I should see if Montel had a recipe for a Pumpkin Smoothie in the recipe book.

He did not.  BUT, he did have a recipe for Pumpkin Yogurt Pancakes and Pumpkin Zucchini Muffins.  I was in!

First up, the pancakes.   I think they might have been super delicious except for the one fact I forgot- I totally stink at making pancakes.   Is that an MS thing?  If not, it should be because part of the problem was flipping the floppy things.   Usually I am a good flipper (see prior post- Flipnastics) but the problem is, I can’t flip on demand.  Plus it was hard to know when to flip.

 

The bottom line was that while I sampled the few bits of cooked pieces I came up with, and they tasted pretty good, mostly I had a mess of burnt cakes on the outside, raw pumpkin yogurt batter on the inside.

Next up were the Pumpkin Zucchini Muffins.  I was able to use many of the same ingredients so I only needed to go back to the store for zucchini which was puzzlinging as all I could find was something called green squash. I asked a healthy looking person in the store for help and she informed that green squash was the same as zucchini.  So why the two different names?  Is it just to confuse the already confused like me?

 

Whatever it is called, I brought it home and made the muffins and score- they were awesome and healthy!!!  They were easy to make and each muffin was filling and had a vegetable and a fruit in it!  I have got the healthy eating thing down friends!

Fall is here and everything pumpkin is good for you.   The world is a happy, smiley pumpkin face, place!

 

*Note #1   This year my local Dunkin Donuts is not carrying pumpkin cream cheese.   Thought I would warn you in case you don’t find it at your local Dunkin’s either.  Why do they take away something amazing?  I had no choice- I was forced to double my order of pumpkin munchkins.

 

*Note #2  Our guy Jack danced a sexy rhumba (yes, rhumba is a dance, not a vacuum cleaning robot,)  to make it to round 3 on DWTS!  His family was there to cheer him on although I am not sure Ozzy knew where he was.  Does Ozzy ever know where he is??  Don’t worry Ozzy, I can relate!

 

MS ironic comment of the night came from Head Judge Len Goodman, “you do weird things with your hands.”

Please keep voting.  Interestingly, I heard from cyberspace that some clueless person has actually challenged an MS’er with the expected “if Jack Osborne can do DWTS then you must be fine.”  The MS’er responded.  I don’t think I can legally print her response here but I say hey, at least they were talking about MS!

(Somewhere in between the bleeps and $%&&$#@@’s of course.)

Talking is awareness friends so let’s keep Jack in.  Turns out, the guy is not only one of us, but a pretty darn good dancer!

Vote for Jack and his partner Cheryl Burke by calling 1-800-868-3402 up to 60 minutes after the show on Monday nights or by logging onto ABC.com or Facebook.com/votedwts up to 24 hours after.

 

 

 

 

Fall for Me, Fall for You

September if for MS’ers

 

It is no secret that autumn is my favorite time of year and that September is my absolute favorite month. I like it even more than my birthday month where people give me stuff, and more than December where everyone gives everyone even more stuff.

September kicks off autumn on the day after Labor Day.

Ok, not technically. Technically autumn starts on September 22nd but my research proves otherwise.

It is very upsetting that the other common name for autumn is fall. Why is that? Does it have to do with the fact that fall is when leaves start falling off the trees? If so, than that is a dumb reason. Fall is a bummer of a word for people with MS and it is super unfair as otherwise, September is a perfect month for MS’er’s like me.

 

I know, I know, my MS is not your MS and your MS is weird. It is especially weird if you don’t appreciate this amazing month that kicks off the most wonderful time of the year. Allow me please, to make my brilliant argument.

Fall is when the weather gets perfect for temperature sensitive people with multiple sclerosis. The heat goes down, the humidity practically disappears, and every once in a while, you will get a refreshingly cool breeze.

Goodbye cooling vests, time for you to collect dust on a shelf next to the beach towels and hand held fans that no MS’er ever uses because your arm gets tired from holding them.

 

Goodbye air conditioning. Don’t need you either and the money MS’er’s save from not using you can go back into our piggy bank to help pay for all of our expensive prescription copays. At some point, the savings in our bank will disappear into heating costs but not until at least October. So save up in this awesome month!

September is when the bugs start to go away. Where do they go? Who cares! They leave and MS’ers can now relax knowing that when we get the creepy crawly feeling it is likely not actually from real creepy crawlers.

People evacuate the beach which makes the beach a much more comfortable and relaxing place to be. A sanctuary for MS’ers to grab some much needed rest and natural vitamin D without trying to balance ourselves and our beach stuff through tons of crowds and noise.

I love the beach in September so much that I actually found the energy to go running on the beach as evidenced by this picture.

photo (1)

Me running anywhere is an incredibly rare sight and I think I was running here as my young friend yelled shark and I panicked. Even so, I was running for a whole 6 seconds! Only in the fall. And, I didn’t fall.

The hockey season kicks off and that is huge for MS’ers! Ok, you may be wondering how I made that leap. And no, I haven’t started leaping. Running is enough thank you very much.

Living well with MS is tough. It is not for the faint of heart. Hockey is also tough-no wimps allowed. Boston Bruin Gregory Campbell played 47 seconds of a playoff game with a broken leg. And it is common for players to lose a tooth (or a finger or an arm,) in one period and be back on the ice the next.

In other pro sports a player gets a little sprain and they get a vacation. Not in hockey.

One of my annoyances is players getting benched for a groin pull. I say, players should stop pulling on their groins during their season. Why should they get a rest for that? Just leave their groins alone.

 

Anyway, one of the most demanding positions in hockey is that of goalie. Josh Harding is a goalie for the Minnesota Wild and he is living with MS!  See, that is some tough sport for tough people.

In addition to hockey, all the best TV shows come back which gives MS’ers something somewhat interesting to watch in that period of resting that is too late to nap otherwise we’d be up all night. In the summer, nighttime is very stressful trying to keep yourself awake until a reasonable hour when there is nothing but crap on television and you are too tired to do anything else but veg in front of the television. (Shark week is a crucial exception to this fact however.)

 

And finally, the best proof that September is for MS’ers is that come September everyone starts thinking of pumpkins and Halloween, which are both orange. Suddenly, everywhere you look, everything is orange. And, as we know, orange is the color of MS.

 

So there you go. September is the start of fall which is the best month for MS but like all ironies with MS, has the worst name for a month perfect for MS. Fall reminds us of losing our balance and

A. Embarrassing ourselves

B. Seriously hurting ourselves

C. Mimicking the awful “I’ve fallen and I can’t get up” commercial or

D. all of the above

We need a new name for this wonderful time of the year. Autumn is ok but diehards used to fall won’t adapt easily so we must create something new.

This month reminds me that all the things I don’t like about Spring (bugs, pollen, heat, humidity, crowds,) have sprung. So, I vote that the alternate name for autumn be changed from fall to sprung.

Any takers?

Crucial MS Public Service Announcement

 

The best show to come back on air this month is DWTS. And, because September is for MS, there’s an MS contender. Jack Osborne is taking on the dance floor and after week 1, is doing an excellent job.

 

I’ve heard it mentioned that this may be bad for MS as people might not get that his symptoms are different from others and that not everybody would be able to take the DWTS pace. I say, whatever gets people talking about MS is good for MS!

And there are some funny moments watching people on the show dance (pun intended,) around the topic. Host Brooke Burke-Charvet, “I know you were nervous before, how are your nerves tonight?” Judge Bruno Tonioli, “your balance is a little off.”

I say we support Jack Osborne in his dancing/awareness quest and vote to keep him in the competition. Technically you are supposed to vote for the best dancer. I say, knowing how tired I get just watching the show, Jack has got to be the best dancer with that crazy rehearsal schedule.

He looks pretty great on the DWTS floor too!

Vote for Jack and his partner Cheryl Burke by calling 1-800-868-3402 up to 60 minutes after the show on Monday nights or by logging onto ABC.com or Facebook.com/votedwts up to 24 hours after. We’ll keep track of Jack’s progress on this very blog.

Way to move Jack, way to move…