All in with Bears

An MS whine without wine I’ve been thinking about bears a lot lately. And it is not because it was just bear week in my hometown- a lovely week catering to Provincetown fun in the sun with the loveliest of bear visitors. Nor is it because I miss the cool temperatures of the fall when … Read more here…

What MS Awareness Month Taught Me

Knowledge is power or, at least, validation Stay tuned to the end to this blog for a really big announcement!   Alright, that’s it! Who do I sue? Where do I find a copyright infringement attorney? Because I’ve had enough. I’m definitely suing! Please allow me to explain. About six months into the pandemic I … Read more here…

No BPPV for Me! Maybe….

July with a dizzy MS ditz If you’re following what started as my medical post but has now turned into a journal, diary, book, tome, and an eventual encyclopedia series of issues, the past two months had me beyond dizzy. Over the phone, my neurologist suggested benign positioning para—something vertigo, (BPPV for those who are … Read more here…

What It Is and What It’s Not

The confusing new role of an MS flare Headache?  Check. Pins and needles feeling wicked bad?  Check. Exhaustion? Fatigue?  Weakness?  Lethargy?  Whatever the hell you want to call it?  Check. Gastrointestinal- don’t even make me say the gross D word? Check. Temperature? No. Came on suddenly? Check. Cough? No. Sore throat? No. Weird kind of … Read more here…

If the Machine is Out of Order, Your Life Might Be Too

Laundry day, laundry week and multiple sclerosis A while ago I wrote a blog titled Laundry Day.  I’m quite proud of it and it remains one of my favorites.  Basically, it described how if you have multiple sclerosis and need to do laundry, that’s likely all you’re going to do that day. Today’s post stomps … Read more here…

The Mystery of the Mysterious Malaise

An ode to Multiple Sclerosis, Covid and Christmas Read to the end for a thank you, a celebration, a suggestion, a condolence, and some bad Christmas jokes Back before I was diagnosed with MS, a friend wasn’t feeling that great. When asked, she said she was suffering from a malaise. What a perfect description, I … Read more here…

Where Do You Go?

An MS/Covid predicament For my newer readers- Please know that I appreciate the severity of the Covid 19 pandemic.  It terrifies me and my heart aches for those suffering because of it.  Please don’t take my lighthearted blog as a lighthearted comment on the crisis itself.  When it comes to chronic illness, to something serious … Read more here…