Laundry Day

Helping the world understand MS fatigue

Today, in this very blog, I’m going to explain MS fatigue to the masses, ie. you, my loyal readers.

I’m finally going to really, really spell it out.

This is something no one else has ever been able to do.

Not scientists.

Not Neurologists.

Not care takers.

Not writers.

Not even my fellow MS sufferers have ever really, completely, fully exponentially (not sure what exponentially means but it sounds good here,) been able to explain it.  Though, Lupus patient and writer Christine Miseradino came close with her 2003 Spoon Theory.

(Did she make up her last name?  How ironic that someone who must endure the sufferingss of Lupus has most of the word misery in her last name.)

If you’re not familiar with the Spoon Theory it’s worth looking up.

And, not to brag, I’m going to be able to explain MS fatigue in just two words.

Are you ready?

Here we go.

Laundry Day. 

Yes, laundry day.

Laundry day perfectly describes MS fatigue.

Please go back in time with me to 2 days ago.

What are you going to do today Yvonne?

Laundry.

Well, yes, but that won’t take all day.  Do you have any plans this morning?

Gather the laundry.

Well, ok, but what about after you are done with the laundry?

I will put the laundry away- hopefully.  If I’m not too tired.

Well, you’ve got to do SOMETHING else.  A day is a whole 24 hours.

Sure.  Of course I’ll do something else.  I’ll probably be forced to use the bathroom once or twice.  And maybe while the wash is washing, and the dryer is drying I’ll be able to read an article or two in a magazine.  Maybe.  Luckily for me the complex I live in has a laundry room that includes an air conditioner, a sofa and a TV.  It also has a recliner but if I’m summoning up energy to do the laundry I probably should reserve the energy it requires to get out of a recliner. 

I remember going to Plymouth Plantation when I was a kid and they would always make a big deal out of how the Pilgrims had to take a whole day to do laundry.  Back then they called it washing day and had to use a river and fire and beat their clothes with rocks or something.  The people in the fake pilgrim hats at Plymouth Plantation made such a big deal about how it took the poor pilgrims all day to get their clothes clean.  But I can totally relate.  It takes all day for me to get my clothes clean too.  And I don’t even have the nice water view they did.

But alas, back to the present.  Now is the day and there’s no point in comparing hardships with people who lived almost 400 years ago.  And, I’m not sure, but they probably didn’t even have a rinse cycle.

I’ve prepared well.

I made sure to go to the bank to get the quarters I needed.  Then I had to open the rolls to make sure there wasn’t any foreign currency or arcade tokens snuck into the role.  I took care of the quarters 4 days ago.  I hauled the detergent and laundry basket out of the closet too, 3 days ago; less to stress about on the actual day.

Why is this such a project?  Do I have a whole army to do laundry for, or even a whole family?

No, it’s just me. 

But it’s piled up a bit as earlier in the week was “take my nephew to the beach day” (and I needed drugs and a whole lot of rest before and after that day.)

Another day was grocery shopping day.  I was feeling pretty good so on grocery shopping day I was also able to get some errands done-awesome!  I was able to cross several things off my list and combine 2 days!

(Except I had to rest a whole lot the next day so maybe not.)

Back to laundry.

I need to wash my sheets and towels and clothes and it’s going to take several loads.

Hopefully, if I’m lucky, I can get it all done today.  It will take a couple of trips to put all the dirty clothes in my car.  Then I will drive 100 feet away to the laundry room.

Next will be a couple of loads to haul into the building.  I’ll put the loads in (if all three washers are available.)  Then rest.

I’ll hope that if anyone else is in the laundry room and wants to chat they won’t be offended if I say that I would love to chat too, but I just need to sit down for a bit while I do.

When said laundry is done, a couple more trips to the car and a couple more trips into the house will be required.

Ideally, I’ll still have energy to put the now clean clothes away so I don’t dirty them up again before I have even gotten them out of the doorway.

In the old days, back when I was like 20, this was all something I did after work and before I met up with my friends for drinks.

Not anymore.

It’s the way of MS fatigue.

And it’s the way of having clean clothes and not stinking too bad so my friends still want to get together when it’s “meet friends for a drink” day.

Yes, 2 days ago was laundry day and I’m beyond thrilled to have that done.

So, if you meet anyone who doesn’t quite understand why you’re so tired and what you actually mean by MS fatigue and how it’s different from partying too hard fatigue or working too hard fatigue or not sleeping enough fatigue just explain it to them with these two words, laundry day.

You’re welcome.

And, if you’re curious, today is blog day.  I got up nice and early for it after resting yesterday from laundry day.

I think the time was about 2 PM.

 

14 thoughts on “Laundry Day”

  1. Bingo Yvonne. Well said.
    Just today I was lucky enough to get to the beach with some friends. Sun, sand, hat, chair, umbrella, in the Cold Atlantic several times so as not to overheat, the usual. Arrived late, left early. Was glad to still be able to be out there. Explained to someone that tomorrow will be “pay the piper day” . Came home. Fed dog. Took shower then did not move for 4 hours. Got up . Nope, another 2 hours. You know exactly and have described it. Beach, or own laundry or still going out has price to pay before and after.
    Totally worth it and very appreciated. Congrats on getting laundry done, blog done, off to the races!

    Reply
    • Thank you so much Sally- I really appreciate it! Glad you got some beach time though even if though you/we pay for it. Sometimes it’s worth it. Other times, not so much. What drives me crazy is when other people try to describe what’s worth it or not. Perhaps this will help explain it a bit. I tend to write better than I speak.

      Reply
  2. you did a great job describing what a job it is to do normal things for a person
    with MS goes thru when trying to do ordinary things for a family or just yourself …
    it is so sad that others don’t want to hear what we try to say of what we go thru for they think we are just trying to get some attention …
    our days are so different from what it was like when we were before this terrible
    disease took over …at first it was just over doing it for we were getting older but nope it got so much more than just getting older …you were able to put into words so good and to the point so others could understand …thank you so much…

    Reply
    • Thank you too Madeline for both checking out my blog and responding- I really appreciate it! My very best to you and I hope you are having a good day.

      Reply
    • Thank you so much Colleen- I really appreciate that! We are all in this sucky journey together! Weird thing is, if I try to describe these things with speech, I usually can’t. MS, go figure…

      Reply
  3. I can definitely relate to the misery of laundry day! I place the laundry basket on my walker precariously because if I tried to carry it unassisted it would not be pretty. I would surely end up on the floor. I read your awesome book and came here to check you out online. We seem to have a lot in common with our writing.Thanks Yvonne!

    Reply
    • Hi Gina- Thank you so much for checking out my blog and writing in! And thank you to for giving MS Madness! a read! So happy to meet you. I just checked out your blog-way to go! Feel free to add a funny story with your blog info on the Giggles page on this website. BTW I LOVE your name. It was my fake id name for 2 yrs. If you want to learn more about it please check out my blog, Here Comes Gina Romani! https://yvonnedesousa.com/here-comes-gina-romani-2/

      Reply
  4. An excellent description on what MS FATIGUE is
    Yvonne. There’s ALWAYS more planning to do what used to be a second thought. I help my wife in some of the household duties. I have MS . She doesn’t. Not onluy that there’s a physical limitation, but the additional mental concentration needed for even the most menial tasks wipe me out.

    Reply
    • Thank you so much Elias- both for checking out my blog and for the flattering comment. So very nice to meet you! I hope you’ll come back here again soon!

      Reply
  5. I don’t have MS but I love how you always come up with cute fun stories that I can learn and understand better about MS…You poor dear how long does it take you to recover after our ladies night get togethers?

    Reply
    • Ah, thank you my friend. Unlike our more exciting ladies nights from years past I was home by 10:30 so it wasn’t too bad. I did just chill the whole next day though. But it’s all good and totally worth it!

      Reply

Leave a Comment