Updates, Tidbits, and Smidgets

A multiple sclerosis recap


Don’t ask me what a smidget is because my foggy brain is too tired to explain it to you. Or, if you want the truth, I have no idea. It just sounded good so I added it to the title.

Speaking of titles, thank you for the title suggestions, comments, words of encouragement and promises to buy my book. For preorders and/or to lock your promise in, just send a blank check to me at the address listed in the contact page. Kidding. I don’t have an address listed in my contact page.

Seriously, I appreciate the support of all of you and that support is what led to me actually publishing my book. But coming up with the title is still stressing me out. It is hard!


Apparently all of you think so to because I received more encouragement in my What’s in a Name contest than title ideas. But I am grateful for all of it! Unfortunately, none of the titles I did receive work quite right, and thus there is no official winner. I am still planning on donating a portion of the proceeds to agencies that help people with MS so I guess you could say we are all winners here.

In the meantime, I am working away on edits and will keep you posted as soon as I get a title that I can post about. But since I wanted to update you on the status of the contest, it occurred to me that some other updates on the blog are in order as well. Let’s check in on how some things have turned out.

In MS Sucks I wrote about how multiple sclerosis was doing its damnedest to keep me away from seeing my favorite band, the Rolling Stones. Well MS, you still suck BUT you lost! My Rolling Stones fairy godmother is stronger than you and she helped me get a ticket and a ride to the show!


I will likely be in pain and a fatigued zombie for a while afterwards but it will be worth it to the see the icons of classic rock. (Mick would agree with that description of his band. Keith and Charlie are pretty humble so they would disagree and name other musicians they feel are more worthy. Ronnie would just take another shot of whiskey and toss off a lick or two.)

Many fellow MS’ers and readers agreed with my nomination of Forget-me-nots as the official flower of multiple sclerosis. But when I reminded them about it so that they could sign the petition, they forgot. So much for that idea….


And speaking of flowers, the day after I posted The Evil Curse of the Yellow Green Demon Dust, it rained and temperatures dropped to the point where many people were forced to put on their heat. This week the demon dust was back and they are predicting a heat wave by the weekend! Oh well, at least the cold weather gave me the break I needed to pull out my air conditioner.

My last ‘get fit’ plan update was in early April with the Not Working It Out post, followed by a brief commentary on the plan in early May with Once Bitten. It is time for some new information.

My ‘get fit’ plan is totally coming together! I have lost 6 lbs since the first of the year. Add to that the 5 lbs I had lost previously when I was chasing my great nephews around the hot, yucky state they live in, and that makes (hold on, let me grab my calculator,) 11 lbs!

I admit that that is not even close to where I hoped to be when I see my neuro in July. And with the arrival soon of my hometown’s annual Portuguese Festival filled with linguica, Portuguese bread, wine and sitting on a bench watching Portuguese dancers, I may not make my goal..


But I have accomplished some things. For example, I have completely given up diet coke and have pretty much given up bread. (Unless I am at a restaurant then I will eat bread, but none at home. Unless I am having a sandwich, but almost none at home.)

Recently I was planning for company and needed to make some snacks. I saw a recipe for incredibly delicious looking cookies that I made but messed up the recipe and they turned into a crumbly mess. So I didn’t eat the cookies. I just used the crumbles to top ice cream.

I still needed a snack for my group and had the ingredients left over and so I made them again. This time they came out the way they were supposed to but I have to say, they were too sweet for me!!!


How is that even possible? Before my ‘get fit’ plan I was the queen of sweet! Honestly, I really didn’t like them. The dough was much tastier.

I insisted that my group divide the leftover cookies between themselves and take them home. But, I refused to share the leftover grapes and put the grape bowl in my fridge next to the delicious strawberries I had bought the day before. One of my friends commented on all the produce I also had in there. She found swiss chard and the berries, and mint and lime that I also bought for a cleanse I was doing.

Speaking of a cleanse, I have become addicted to water. I drink so much water I could be a fish. Wouldn’t that be fun? I so wish, I wish I were a fish….


And speaking of fish, I have started taking walks on the beach. No, I haven’t gone in the water as I still look too scary to put on a bathing suit- don’t want to scare the great whites away! But I have come out of my cave and walk so I can exercise and soak up natural vitamin D. I like to make my walking social, so I bring my Wii Fit with me for company….

Oh, and I quit smoking!!!! Ok, I actually quit smoking several years ago but I think it still counts. And now, when I bum a cigarette off of a friend here and there, I actually feel gross afterwards…

So you see, even the babiest of baby steps eventually do get you someplace…It is taking me longer than I should to make healthy changes but I am thrilled that the changes are being made. I know that a whole lifestyle change is in order but it is unlikely that I will suddenly adapt to that. So for now, I just keep stepping along, thrilled that I have moved past crawling..

d walking

Image courtesy of [Stuart Miles] / FreeDigitalPhotos.net

Image courtesy of [Stuart Miles] / FreeDigitalPhotos.net

Image courtesy of [Danilo Rizzuti] / FreeDigitalPhotos.net

6 thoughts on “Updates, Tidbits, and Smidgets

  1. Y- 11 lbs is great! Think of it this way- picture 11 One Pound bags of sugar in a row- visualizing what each pound can actally represent is a great way to keep motivated and be proud of every little one you loose! Keep it up my friend.

    • Thank you friend but why did you have to mention sugar? Now I want sweets!! Kidding of course. I ALWAYS want sweet…

  2. The Stones?…LUCK-KEE! Just saw in today’s paper Charlie Watts just turned 72. (looks like he is 102, but he can still pound the skins!)

    Congrats on the life style change. Movement is the key to health & staving off the effects of MS. Keep at it.

    • I know- I am really excited! Should dance off several lbs while I am there… But now I have their song You Got to Move in my head. Charlie turned 72 today…

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