Tag Archives: music choice

Shower Time

A new multiple sclerosis skill

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People not living with multiple sclerosis or another chronic illness can’t possibly understand the fatigue we talk about unless they have actually spent hours trying to find the energy to take a shower.

It doesn’t matter if my achy body slept in til 11 or I had to get up at 7 for Mass.  (What is up with 8:30 Mass?  My Christian friends might disagree with me but my reading of scriptures says that worship is not appropriate until the worshiper is wide awake, usually after 10:30.)

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The plan for this particular day included finishing (and actually starting too) a writing project I had known about and been thinking about for months.  It was due at midnight. Showering helps me think through ideas but getting into the shower has become a lot of work lately.

It shouldn’t be.  Especially on this day.  This was to be a quick shower. I wasn’t going anywhere besides my desk.  I didn’t need to wash, condition or style my hair.  I didn’t need makeup.  All I needed today was a quick rinse, soap, rinse again, and dry.  Easy.

I probably didn’t even need a shower except that for me, my secondary illness is germaphobia so going without is out of the question.

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I drank my tea.

I ate my breakfast.

I answered my emails.

I sorted through my daily meds.

I made my bed.

I posted a funny baby video to Facebook.

I watched a DIY video on how to make a cheap bed for my dog which was pretty silly since I don’t have a dog.

I thought about my writing project.

I thought about why taking a shower is so exhausting.

I started this blog.ID-100165569

What makes a shower so exhausting?  Is it the standing? The water temperature? The slip and fall concern?  Is it the multiple steps even if the multiple steps are so simple we should be able to do them without even thinking about them?

I really didn’t know but I had to figure it out.  I had things to do and they started after I finished my shower.

I thought that music might help through the getting clean process and so I turned on the Music Choice channel.  I normally go for classic rock but today the 80’s felt like better shower music.

The channel was playing Too Shy by Kajagoogoo.  The music notes said that the lead singer left the band to pursue a solo career in the 80’s.

“Well how did that work out for you Limahl?” I snickered.

Before I knew it, I was Googling Limahl.  Turns out his solo career went fine.  But he was definitely cuter in the 80’s.

me capturing the 80s

me capturing the 80’s

Then again, weren’t we all?

I  v— e—r— y  s—l—o—w—l—y headed to my bathroom.  It was shower time.  Since I had 80’s music on shower time turned into Hammer time which made me think of MC Hammer.  Thus, that was the song in my head when I finally got into the shower, over three hours after waking up initially.

Taking a shower should be automatic and NOT a big deal.  It is such a minor part of my day that I don’t even write it down on my “to do” list; and I write EVERYTHING down on my “to do” list.ID-10094176

Post a funny baby pic to Facebook– scratch that right off.  Done and done!

In the years before MS symptoms started rearing their ugly and obnoxious head, taking a shower was how I kick started my day, not something I had to work up too. But multiple sclerosis can change many things both huge and insignificant.

Still, I refuse to let MS completely beat me up. Whenever possible, I go for the positive.

Now dressed and back at my computer and finally starting my writing project a thought occurred to me.  Yes, it was ridiculous how long it took me to do such a routine task.  But look at all the things I accomplished in the meantime.

Those cute baby videos don’t post themselves you know!

Come to think of it, I was pretty impressed at the things I had done while I procrastinated the soap and water part of my day.ID-100127363Back in the old days I didn’t have such procrastination skills. Procrastinating meant zoning out in front of the tv while some sitcom I had seen hundreds of times broadcast canned laughter.  I would literally be a useless clump of procrastination nothingness.

Now look at me!  It takes quite the skill to be able to procrastinate at this level.  It is not for the weak or faint of heart.

Neither is MS.

I decided that this skill I’ve developed since my diagnosis is nothing to disregard.  I’ve entered into an elite society of professional procrastinators and I couldn’t be prouder.

I don’t want to pat myself on the back too much but MC Hammer’s words lingered in my brain.

Hey you regular, amateur procrastinators- “You Can’t Touch This!”ID-10056127

March is MS Awareness Month and we only have a couple of weeks left!  If you like your awareness brought to you with a giggle then please check out my book, MS Madness!  A “Giggle More, Cry Less” Story of Multiple Sclerosis.  You will definitely giggle.  It says you in the title!

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The World is coming to an End Part 2

Multiple Sclerosis is even uncooler than originally thought

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If you read last week’s blog, part one of this crucial two part posting, you might have felt that I was exaggerating.   But consider even more evidence as multiple sclerosis and aging continue to drastically combine, making me and my world even uncooler than originally thought.

As someone smart who would have loved to have the talent to be in a rock band, I recognize that rock bands are cool; especially classic rock bands.   I recently discovered that my TV has on it something called Music Choice stations where I can pick a genre of music and just listen to it, 24/7 if I feel like it; or if MS is keeping me from sleeping, thinking or doing anything remotely productive.

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I didn’t know about this station previously as the stations I actually get on my television die after about channel 100.  Music Choice is in the 500 range and whoever goes all the way up there?

Anyway, they have a classic rock channel and of course, that would be the coolest one to watch.  And it’s even better than listening to a good radio station as no commercials interrupt the classically cool music.

As I was listening to this station I noticed that to give you something to look at while they play music they offer “Did You Know” questions about the artist whose song they happen to be playing at the time. I was super proud that I knew most of the answers to the questions.

Yes I knew that Mick Jagger went to the London School of Economics

Yes I knew that Jimi Hendrix lit his guitar on fire at the Monterey Pop Festival

Yes I knew that Led Zeppelin was inducted into the Rock and Roll Hall of Fame in 90’s.

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What a relief!   MS hasn’t robbed my brain of knowledge of important information!

But after the trivia questions, the channel shows advertising relevant to the person watching the channel.  And what did the Music Choice Classic Rock channel offer?  Advertisements for Medicare, knee replacement surgery, Life Alert bracelets and loan payments!

Seriously!  The channel could at least take me back to my party days by offering fun beer and wine advertisements.

I no sooner thought that when they showed another advertisement- for help with addiction!

Everything I ever understood about what I thought was cool and what wasn’t just got completely shifted around as I sat on my sofa, enjoying the music but paranoid about what ad would pop up next.

Speaking of paranoid, did I know that Black Sabbath’s song Paranoid was their only top 20 hit?

No, I didn’t know that one.  And like that, my worries about the world coming to an end were back.

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I couldn’t even take comfort in the fact that my favorite guitarist, Keith Richards, wasn’t helping me sort this all out.

Keith Richards, the hardest rock partier of the seventies and one of the coolest musicians ever, had just published a children’s book!!!

Who could have possibly seen that coming???

 

True, it is a book about a cool kid with a cool grandpa who both play cool guitars.

And true, it has really cool illustrations done by Keith’s own daughter.

But still, this classic of classic rock guitarists writing children’s books-how am I supposed to handle that?

Luckily I took comfort in the fact that if Keith was going to write a kid’s book at least he wrote a cool one. I pondered further and wondered if the answer is that maybe perceptions change as we age and/or as MS robs us of things that we treasure.

Yes, MS is still super uncool.  But maybe it’s not that simple.

So please allow me to take pride that, for the most part, I can still recognize cool even though cool might not be as obvious as it used to be.

MS= Very, very uncool

Worrying about what’s cool and what’s not=uncool

Living life with whatever you may need to rock it= Cool

Realizing that changes in life don’t mean that the world is coming to an end= cool

People with MS kicking MS butt= Super, super cool!  Probably, the coolest of the cool…

Next to Keith Richards of course.

 

A letter to my awesome readers-

Dear friends,

Did you know that you can help fight multiple sclerosis?   I believe that one way is by using your sense of humor to fight back!  Every time you smile, giggle or laugh out loud, you are fighting back!

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Another way you can fight MS is by purchasing my book/ebook, MS Madness!  A “Giggle More, Cry Less” Story of Multiple Sclerosis where a portion of the proceeds from each sale goes to nonprofit agencies helping people with, or who are fighting chronic illness.

But here’s a new way to fight back.  By checking out www.iConquerMS.org 

This website, sponsored by the Accelerated Cure Project for MS is described as a research initiative where MS patients can share their health histories and work together to find the best research to develop a cure.  With patients working together, who knows what we can do!

Check it out here to see if you would like to become involved..

www.iConquerMS.org

 

 

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