Tag Archives: beatles

Rock in a Windy Place

A decisive multiple sclerosis night out

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Is MS the reason why I’m so freaking indecisive?

I’ve thought about it a lot and can’t decide.

Last Saturday I had plans to meet up with my equally indecisive friend, Lucy.  Not the young Lucy from an earlier post, Out of the Mouth of Lucy; this Lucy is an adult and we have been friends for years.

We couldn’t decide what we were going to do that Saturday night- we just knew we wanted to do something.

Someone from work had given Lucy free tickets to see a live band that we had never heard of.  The words “free” and “live band” should have definitely defined our options but we just weren’t sure.

Multiple sclerosis was certainly a factor in my indecision but not in the way you might think.  The loud noise and fatigue worries that usually come with me to social events actually slipped my mind this time.

My worry was the venue.  It was a tent about 25 miles away located next to an abandoned, creepy, air force base on a cliff overlooking the ocean.

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What’s wrong with that?

A tent means a tent which means no facilities which means the dreaded port-a-potty.

Complicating my horrific MS bladder is my greatly increasing germ-a-phobia and port-a-potties I just can’t do.  I don’t care about the tricks people have shared with me for using them. Just the idea of opening the door sent me cringing……

But still, live music for free, I was tempted.

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Lucy showed up at my house and we discussed our evening options.

“What do you want to do?”

“I don’t know, what do you want to do?

Back and forth we went until we couldn’t take it anymore and our night was flashing by.  We finally wrote our different options on folded pieces of paper.  I made Lucy pick-I couldn’t handle the pressure.

The tent won.  So I used the bathroom for what would likely be the last time in several hours and we started out.

Five miles into our journey the sky darkened.

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Ten miles in we heard thunder and saw streak lightening.

“Do you think we should turn back?”

“I don’t know, what do you think we should do?”

“I don’t know, what do you think we should do?”

The rains came just before we reached our destination.  But once in the parking lot it seemed to let up a bit.

It was then I made my only decisive decision of the evening.

“Lucy, I think it’s letting up- let’s make a run for it.”

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No sooner did we walk away from the car when the downpour hit, complete with heavy winds and, of all things, hail!

So much for decisions.

We rushed under the huge canvas arriving soaked, pelted, and bruised.   We still hadn’t totally committed to this concert but it would have been silly to leave at that point.

So we shook ourselves off, headed to the bar and then found seats on the edge of the venue, should we decide to bail early.  In minutes the wind grew fierce-so fierce it blew out the canvas sides of the tent leaving us wetter and even more beaten up.

It scared us too and we did the wise thing, running to seats deeper underneath the now shaking tent.

We watched the frames and speakers wobbly above us as we listened to the howling wind.

Should we leave?

“I don’t know, what do you think we should do?”ID-100413542

It didn’t help when I heard the fellow townie behind me say, “aye, there’s a squall a-comin. Hope this bitch is anchored down.”

Nor did it help when the band took the stage and the lead singer held up his beer, toasted the crowd and exclaimed “Well, if we go down at least we go down together.”

While amusing it was also concerning. I’m not usually so wimpy but being surrounded by 200 plus people when a huge, flapping, filthy canvas collapsed in a freak storm seemed to me to be the stuff of nightly news proportions.

I’m not afraid of the end; I just worry about how the end happens.  If this was to be the end it didn’t seem so great, being trampled by an audience at a concert I hadn’t committed to with a band I wasn’t sure I would even like.

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I almost would have preferred to be tossed from the tent into the Atlantic just a few yards beyond.  Perhaps entering a free standing port-a-potty wasn’t such a bad idea after all.

Yes, leaving would have been the smart thing to do.  But I had just shelled out $7 for a little plastic cup of cheap wine.  I figured we could reassess the situation after a few more gulps.

The end would seem smoother if I had a small buzz going on.

Thing is, about two songs in, and four sips down, we stopped worrying about the risky weather.  The “bitch” must have been anchored down or maybe the winds let up. Who knows?

I can’t tell you because the band was that good!

Not AEG

Not AEG

Before we knew it, the Adam Ezra Group had us clapping, then chair dancing and then actually dancing

Soon I forgot about port-a-potties and tents.  I forgot about the end and being indecisive. I even forgot about expensive cheap wine.

The whole night seemed to fit together perfectly when Adam Ezra introduced one song based on a humiliating experience of his.  At the end of his introduction he asked “isn’t laughing at our embarrassing moments healing in some way, especially when sharing those moments with others?”

I could relate.  Isn’t that exactly what I do?  Don’t I take the humiliating things multiple sclerosis makes me do, because of course, I’d never do stupid stuff on my own, and then share it with all of you so we can laugh at me, and at MS together?

And I realized that perhaps it’s the unexpected moments, the ones you really don’t decide, that make life fun.

And this band was definitely fun!

There’s one terrible, horrible side note however.

The last song the group performed was an acoustic cover and they asked the audience to come down to the stage and sing it with them. Everyone was pretty hyped and so we headed down, excited to participate.

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But then I heard the opening notes of all things, of all the songs in the world, “Let it Be”- a Beatles song!

As you likely know from millions of my prior posts, I’m a Stones fan.  And while there are many people who can be both a Rolling Stones fan and a Beatles fan, I’m not one of them.

I glared at Lucy and her smile told me to get over it.

And I did!

The Adam Ezra Group was that good!

Adam was being filmed as he walked among us singing and playing.  At one point he stood on a chair directly in front of me.  And so, you my friends and readers who happen to be Beatles fan should be pleasantly shocked to know that someone, somewhere has footage of me dancing and singing to a Beatles song!

What has the world come too???

If you get a chance to check out the Adam Ezra Group either in person or on line you won’t be disappointed! And no, I’m not being paid to promote them.  I just love their music and think you will too!

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MS Sucks

Multiple Sclerosis attacks the Rolling Stones

 

It’s not like anyone reading this title is going to be surprised or argue with me.

MS doesn’t suck. What are you TALKING about? You are out of your mind!”

I have known this fact a long time as my sister, who had been living with MS for eight years, filled me in. To make sure there was no confusion, my first neurologist also informed me of this fact.

“I’m not going to lie to you, MS sucks.”

I try to take the suckiness in stride for the most part, hence my blog posts where I beat up on MS by making fun of it. But now MS has gone TOO far!!!

There is so little that makes me cool in this world and MS is seriously threatening my cool nerves and I am mad!

As you know from my prior posts, I am a Rolling Stones fan. Ok, I am technically a Rolling Stones addict. How anyone can not be a fan is one of the great mysterious of the world. These guys have been playing incredible classic rock music for over 50 years!

 

When the Beatles were singing about how all you need is love, yet biting each other’s head off in the studio, Mick and Keith were writing non sappy songs, beating each other up, and then going back to record their non sappy songs for over 5 decades. And like it says in scripture, “and on the eighth day, God created the Rolling Stones.”

So here is my MS problem.  The Stones will be in Boston, within two hours of me, breathing the same salty sea air as me and MS is trying to keep me away!!!

Multiple sclerosis is trying to attack my time with Keith and the boys in several sucky ways. First, the physical factors-can I last a whole 2 hour plus concert without having to run to the rest room a million times? Even if I can narrow my evening bathroom trips to something more normal, say 2-3 times in that span, what songs will I miss? Will I be able to find my way back to my seat?

Speaking of seats, I sit better than I walk and walk better than I stand. But you don’t sit at a Stones concert. It is impossible. How will my legs fare after 2.5 hours of standing in place dancing?

 

On a more serious note, the concert will be painful. As incredible as the music is, my MS can only tolerate certain decibels. OK, if the decibels are filled with classic rock by the icons of classic rock, I can deal. But there is the other noise/din that will continuously assault my nerve frayed brain.

Even the pain that the commotion would cause would be worth it. An MS flare, major pain and exhaustion beyond any I have experienced before would be worth it for the sake of the opportunity to see these guys one last time. (In spite of the six other times I have seen them perform one last time.)

But here is where the real problem lies. My dear friend, a fellow Stones addict-she is even more addicted than me if you can believe it- has been and would be my fellow concert goer. She is not able to drive at night. MS does not allow me to safely drive in the city- too many things coming at me leading to lack of control and major sensory overload. I could drive to the outskirts of Boston and we could take the subway in, but it is highly unlikely that after the concert I will be capable of managing the train and even if I did, unlikely I will be able to drive at that point.

 

My friend and I were trying to sort this out. Most of our priors Stones gigs were chauffeured by her husband. When they first met, he was seriously courting her and a concert was the least he could do to impress.

By the next show, they were newlyweds and were in the bliss of the newly married, eager to share this experience together; with me tagging along of course but I tried to stay out of the way of the mushiness.

Years later, they had a baby and her husband was so grateful for their first healthy child that the least he could do was take her and her friend to the show. Upon the birth of their second child, they desperately needed a night out and Stones were just the thing.

Now, after being married forever, her hubby is less enthusiastic. Perhaps he has forgotten his wedding vows, “I, newly besotted husband, promise to love, honor, and abide by my wife’s Rolling Stones addiction for as long as we both shall live.”

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I will have to remind him.

But until he re-discovers his desire for some more Stones excitement, my friend and I tried to come up with another plan. We talked about the problem the noise/commotion factor would cause me. She asked if ear plugs would help. They would, and I have some clear ones, but their help would be minimal at best.

I thought of who else might be willing to drive us. My dad drives me to my city doctor’s appointments. And he does have good taste in music. Perhaps he wants to go? The image of me enjoying the show with ridiculous ear plugs and being babysat by my dad sent shivers of extreme nerdiness down my spine.

Damn you MS!

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But alas, my dad is not free that night. And frankly, neither are the Stones which is another way MS is trying to keep me from going. Due to MS, I do not have a steady income and 50 years of the best music in the world doesn’t come cheap.

Just when you think you might possibly have MS figured out, it throws you another curve. In the scheme of life with MS and its worst case scenarios, I suppose losing what little cool factor you have isn’t the end of the world. But I will fight it all the way.

If I am not able to make it to the show, that night I will blast Exile on Main Street from my tiny speakers and lift a shot of Jack Daniels to my favorite band.

You don’t think Keith will mind if I use tea instead, do you? Whiskey gives me a killer headache.

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One week after the death of my friend, a fellow MS’er, and just days after the tragedy in Boston, I am in desperate need of a good laugh again. If you are too, I hope the above blog helps. If not, look for some of my blogs live on YouTube by typing in my name. I actually sing in one of them. That should get you laughing for sure!

 

 

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