MS Insanity Galore

A multiple sclerosis contest and some multiple sclerosis advice

*******Contest*******

I’m starting this holiday month and this week’s blog off with my latest contest friends!!! I promise as long as there are entries, there will be at least one winner!

The idea behind this contest is to get everyone excited for the February release of my book MS Madness: A “Giggle More, Cry Less” Story of Multiple Sclerosis.

The first place winner of this month’s contest will receive a $25 Amazon gift card as well as an autographed copy of MS Madness. The next five people who answer somewhat correctly will each receive a free ebook of MS Madness.

Please enter by sending me a private message either through the contact section of my website, or by liking my yvonnedesousa.com Facebook page and then sending me a private message there. The first accurate answers will win.

Please send in your answer no later than midnight on 12/26/13. The winner will be announced in my 12/27/13 blog.

******Question******

So here is the question for the December contest-

I open MS Madness: A “Giggle More, Cry Less” Story of Multiple Sclerosis with two different quotes about the importance of smiling and good humor from two very different sources. What are those sources?

******Hint******

One source is the Bible and the other is a song from my favorite band. The most accurate answer will include a book of the bible and a song title. If no one gets both, the first person to guess one or the other will win.

Good luck everyone! And now for today’s blog-

It is a repeat but as I hang out on MS social media sites, it seems like this issue is relevant for many and may be worth a second read.

******Blog******

2013 started in my world with two afternoons of MRI’s, my fifth set since my body started tingling all over, and not in a good way.

You would think that having previously undergone four MRI’s in a three year period, I would know what to expect. And since I am generally not claustrophobic, the process wouldn’t be that horrible. But each time I walk in, I have completely forgotten lessons learned in the past and it is like I am having this test for the first time.

This year, however, I got smart and thought to write down the things I learned so that I will be better prepared for the sixth MRI series. And since I will forget where I put this list, I am publishing it here so that maybe some of you can remind me of these lessons when I need them. Feel free to adopt any of these yourself if you are about to be shot down the tube.

The technologists will tell you that MRI is an abbreviation for Magnetic Resonance Imaging. They are lying.

MRI is actually short for “Major Radioactive Insanity.”

Major, because while there really isn’t any pain involved, while you are stuck in the tube it feels like a really big deal.

And do not let the technologists tell you any different, there is some sort of radioactivity involved.

If there wasn’t, why would you have to wait for the green sign to light up before you enter the room? The way the technologists freak out if you step just a little too closely to the door while the light is red, there has got to be some type of radio something or other going on.

Radioactivity, radio frequency, Sirrus satellite radio, whatever. It is radio something and it is serious.

And insanity? Yes, what goes through your mind while you are in there is nothing if not insane.

Ladies, you cannot wear a bra. Even if you know for sure that there is no metal anywhere in or on your bra, there is, somewhere. The little hooks or the synthetic material of a sports bra have microscopic bits of metal in them.

Even if you happen to be a 34A and wearing a light cotton/lace thingy with mesh hooks, you need to take it off; if only out of respect for those of us who must wear underwire over the shoulder boulder holders.

Go to the bathroom before starting the test. Once beginning the test, keep reminding yourself you do not need to pee again. You really don’t. It is just part of the insanity, this bladder mirage.

If you panic that maybe the technologists have forgotten you in the machine and left for the day, don’t push the panic button to check. It will only delay the time you are stuck there and really, really annoy them. And trust me; you don’t want the technologists annoyed with you until after the MRI is over.

If you get super bored, don’t push the panic button just for something to do. They don’t like that either.

If you think you might seriously panic about being stranded (this particular panic occurs to me during the brain MRI when they actually have to lock my head into the MRI vise), then take their car keys and lock them in your assigned locker.

You won’t be able to take the locker key into the tube with you (its metal), but you can hide it somewhere in the outer room and then kill the time in the tube trying to remember where you hid the key.

At least it will be hidden from the techs so that they can’t leave until they bring you out and you have all searched for the locker key you so carefully hid.

If, while your brain rambles during the test, you get a sudden desire to reach out to an ex-boyfriend, ex- boss, ex- party buddy, ex- friend, or ex- roommate, don’t do it as soon as you get your phone back. This is another MRI mirage.

If contacting your ex anything wasn’t a good idea before you went into the tube, it is DEFINITELY not a good idea once you get out.

If your doctor orders something called “contrast,” at some point the technologist will slide you out of the machine and inject ink into your body. This does not mean that later in the day you will spit, sweat, pee or cry pretty colors, which is a total bummer. I hoped to create my own MRI/MS Rorschach print.

Damn, you just can’t have any fun with MS.

Speaking of bodily fluids, you still don’t have to pee. Well, ok, by now you probably do. Try to ignore this fact. You won’t be able to ignore it but trying to will at least give you something else to do until the test is over.

The MRI takes five hours. It doesn’t really, but if you think that it does before you go in, the actual time it takes will be a little more bearable.

You will be able to keep your socks on. If you choose to do this, make sure your socks have non skid, gripper soles, they kind the put on little kids feet pajamas. If you don’t, when you are finally free to go you may likely be so excited to get out of there that your socks slip, causing you to slide across the floor, bang your head on the table you just go off of, and have to repeat the whole process all over again to see what damage you have just caused your brain in your excitement to get off the table.

At least the base line tests will already be done.

(So, no, I didn’t actually hit my head on the table when I slid across the floor. But I came close and MUST remember feetie socks next time.)

Finally, the biggest MRI lesson is that if the technologist gives you a disc to take to your doctor, never, ever look at it without your doctor present.

If you do, you will be convinced that you have the spine of a frog, and the brain of Frankenstein which will cause you to enter into a state of depression the whole week until your appt where your doctor will tell you that what you were actually looking at was an old Rorschach test you happened to have hanging around your disc drive.

Happy insanity, ooops, I mean imaging, everyone.

 

 

 

4 responses to “MS Insanity Galore

  1. Your post might be a repeat–but definitely worth a second read!
    I like the colorful phrasing…”shoulder bolder holders.” Funny stuff!

    • Colorful phrasing? Over the shoulder the boulder holder is a technical term some of us females are forced to carry, or shoulder so to speak…

  2. Hahahaaa……I needed a laugh tonight and went in search of your blog intentionally. You are part of my ‘fight depression’ plan! It’s brilliant and I want to share it with every MRI tech that I know and every patient with MS . You are awesome!

    • Thank you so much Judy! I love being part of your ‘fight depression’ plan! You are awesome too and I am very grateful for your support!

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