Category Archives: MS Social Events

Like an MS Rolling Stone

Classic rock for MS’ers

Picture 22

I have been terribly remiss in keeping you, my dear friends, posted on important things going on. I have completely dropped the ball on filling in the details. For that, I greatly apologize.

I know you have all been on pins and needles, different pins and needles from the ones your MS usually puts you on, to hear how things went in June. Did I survive the Rolling Stones concert over one month ago?

Well, finally, here’s the scoop.

I did survive and it was absolutely amazing!

I attended the show with my Rolling Stones fairy godmother and another friend of ours. Three hot, classic rock chicks psyched for some great music hit the road. And incredibly, we found Keith Richards stranded by the side of the highway in need of a ride to his own show!

keith2

We picked him up and he was very grateful.

Wait, something doesn’t feel right. Oh, MS moment time.

That didn’t actually happen to my friends and me. It happened to some people I don’t even know but I saw it on the news. And the rock star was not Keith but Dave Matthews. Sometimes my MS brain confuses things here and there.

We did however get to meet Mick outside. I have proof-please see the photo below of my Rolling Stones fairy godmother and I posing with him.

photo

I know what you are thinking. That is not Mick but just some guy in a Mick Jagger mask.

We thought that too. So we asked him and he assured us that yes, he was the real thing scoping out the before concert crowds. Exciting!

But here is the main point- multiple sclerosis is no match for the longevity and talent of the Rolling Stones! Not only did I survive but thrived through the concert!

stones2

I didn’t need the embarrassing ear plugs as the music was just pure classic and of incredible sound quality. Beautiful music to my super sensitive ears- total score.

I only needed one bathroom break and since our seats happened to be somewhat near the ladies room, I only missed one verse of Midnight Rambler which was broadcast from the restroom speakers anyway.

And, I was only mildly fatigued. My unusual energy didn’t come from any legal speed prescription from my neuro- my MS brain forgot to ask for a new RX.

Perhaps this energy came by osmosis from Mick to me.

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How does he do it? Mick just doesn’t stop. He sang, danced and ran around more than my two year old nephew. And even my nephew needs a nap after two hours. Mick went for almost three.

It was a great night in the city of Boston with Mick even sporting a Bruins jersey to add even more perfection to the show.

mick bruins

Since I miraculously managed to enjoy the show without too much fatigue, I also wasn’t experiencing any brain fog. As such, I was able to discover something new about the Stones catalog.

I have mentioned before that Keith had an aunt who died from multiple sclerosis and so he is sympathetic to our plight.

What I didn’t realize before this June night was that so much of their catalog is written specifically for us MS’ers.

Thank you Keith!

Don’t believe me? Please allow me to offer these numerous examples just from the 22 song set list of the first Boston show.

at garden

Sway– “It’s just that demon life has got me in its sway”

You’ve got the Silver– I do. I do have the silver. Between the brace, the cane, the wheelchair and the medic alert bracelet, we MS’ers sure do have some silver.

Start Me Up– Who needs Provigil when you’ve got Mick, Keith, Ronnie and Charlie to get you going?

Jumping Jack Flash– the ultimate spasticity song if ever there was one!

You Can’t Always Get What You Want-Tell me about it. I would like one night where I don’t have to get up to pee 20 times. How about a night when I only have to get up ten or maybe just eight or nine times? That’s what I want. Is that too much to ask?

I’m Going Down– Please. If that is not an MS anthem then I don’t know what is….

One More Shot– As in, one more shot before I can start Tecfidera?  Yea!

Doom and Gloom– “Feeling kind of hurt. Sitting in the dirt. All I hear is doom and gloom.”

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Before They Make Me Run-“….pills and powders, you can choose your medicine….” Keith predicted the end of injections back in the 70’s!

Midnight Rambler– A song describing an MS’ers brain on one of their middle of the night bathroom jaunts.

Sympathy for the Devil– the devil is a veiled disguise for the insidious illness known as multiple sclerosis. And it deserves no sympathy which is the point of the song. “Hope you guessed my name. But what’s puzzling you is the nature of my game…”

Get Off of My Cloud– An MS’er’s response when non-ms’ers say something that ticks us off! “Hey! You! Get off of my cloud! Don’t hang around cause two’s a crowd…”

Tumbling Dice– I didn’t fall exactly, I just took a tumble with one of my MS friends. “Baby there’s a fever in the funk house now. This low down bitchin’ got my poor feet a itchin’

dice

Satisfaction– As in I can’t get no….”Cause I try and I try and I try and I try, try, try”

So there you have it. Over half of the Stones set list for just one of their many concerts are multiple sclerosis themed.

Don’t believe me? Think this is just a coincidence? Well, I have proof.

I asked Mick when he posed for the picture with us and he said it was true. And this Mick wouldn’t lie, would he?

tongue

 

Leslie’s Wedding

This MS’er goes to a party

Groom kept falling over

It was the morning of a friend’s wedding and I thought I was prepared. In the old days, thinking I was prepared meant I was prepared. I had an outfit ready. Fancy, gauzy, flared, black slacks that I had worn as part of an ensemble to the last wedding I went to, before multiple sclerosis officially entered my world. For some strange and annoying reason, the top no longer fit. Luckily, my mom had a perfectly nice top I could wear.

I found shoes in my closet that would go with the outfit without being too high or obnoxious for me to walk in. I had a jacket in case it got cold, a purse that matched, and back up shoes in case I had a long walk to the church. (The church was small and parking was often tricky.)

As the occasion of the wedding brought up many memories of my friend, I wanted to write her a personal letter to put in the card. I woke up early and with my morning cup of tea beside me, turned on my computer and wrote to her. I was happy with how the letter came out and was finished except for printing.

I started to play around with font and then color. Somehow, I managed to highlight the text in black and could not figure out how to undo it. I tried everything, even copy and pasting the text to a new document and trying to keep the highlight while changing it to a lighter color. Nothing worked. Not wanting to abandon the personal sentiment of a letter meant that I needed to start all over again which meant that I had far less time to get ready.

Shower and makeup. I had stopped wearing makeup since diagnosed with my other medical condition (the gross eye issue called blepharitis– if you are wondering what that is, check out my earlier blog post, Oily Tears and All.) But I had bought make up for this special day.

Trouble was, I always have trouble with lipstick. So I bought a lip gloss that swore it held like lipstick. It did. So much so that you needed an industrial cleaning agent to remove it, which I did not have. When my hand shook and I smudged the gloss on my upper lip, the stain was coming with me to the wedding.

I was really late now, so no blow drying my hair into a nice style. I never do anyway, it’s too exhausting. I usually just put some sort of goop in my hair and hope for the best. Most of the time, my hair cooperates. Today, it did not.

On to getting dressed where to my horror, I realized that I didn’t have any black underwear to wear under the pants. The pants screamed for black. I actually did have black underwear, several pairs, but I hadn’t thought to set any aside for today and they were all now at the very bottom of the very dirty laundry pile.

I found a pair of clean dark blue that almost worked, but not totally. That meant that instead of the dress socks I hoped to get away with wearing, I had to go with the black panty hose I had bought just in case. Just in case what, I didn’t know. I guess, just in case I needed to camouflage the wrong color underpants.

It had been forever since I wore hose and I forgot how tricky they are to put on. I sat on my bed and got my right leg in. The left leg refused to cooperate. It seemed I couldn’t lift it high enough to put into the hose without falling off my bed. I struggled and struggled and never remember having this much trouble with balance and coordination before. I eventually contorted into the weirdest position imaginable and managed to figure it out.

Then, of course, I had to pee.

The outfit was no trouble to put on but there was the realization that I hadn’t tried the slacks with the shoes. I must have been wearing higher heels at the last wedding as this morning I kept stepping on the pants. As if walking wasn’t hard enough!

Jewelry was next and as I struggled with the right earring in the ear lobe that had pretty much closed up, I was reminded of when the bride’s mom had originally pierced my ears way back when with a sewing needle and some ice.

Would Sallie have her needle with her at the wedding? Even if she did, she would be too busy to pierce my ears anew so I stabbed at my earlobe several times until the earring made its way through.

Finally out the door, I found a prime parking spot on the street directly in front of the church. Trouble was, I was not able to parallel park my car without half of my car up on the curb. I embarrassingly tried several times in front of other wedding attendees before giving up, and at the direction of one of the ushers, double parked in the church lot.

I knew I would be kissing and hugging people and my meds give me horrible breath so the last thing I did before entering the church was pop an Altoid into my mouth and then dropped the tin; white chalky Altoids spilling all over my fancy black slacks.

The bride and I

And then it was time for the wedding. I had made it. The bride was gorgeous, her and her groom were ecstatic, I had a blast catching up with old friends and if anyone noticed my smudged lip color, my bad hair, Altoid remnants all over me, or my tripping over my long hem and hiking my pants up constantly, they didn’t say.

So what if the hem/heel issue, my fatigue and my wobbly legs kept me off the dance floor.

So what if the volume of the band increasing greatly after dinner required me to leave earlier than I would have liked, missing the cake. Who needs cake? I am on a ‘get fit’ plan, remember?

(For the record, I ate the salad and green beans that came with the wedding dinner.)

And so what if my leaving early meant that I could not try to catch the bouquet? I don’t need a bouquet. Unless George Clooney dumps Stacy Keibler and gets over his commitment phobia which is not likely any time soon.

Maybe by the time I go to the next wedding…….

Congratulations to Kenny and Leslie!

Bride and Groom hitting the road

Photos by JA and JT as my disposable camera just doesn’t cut it.