Just another Weird, Weird Day

“My MS is not your MS and your MS is weird.” Brilliant, semi-famous quote written by me Your MS is weird.  And sometimes, I suppose, mine is too.  Life with MS is certainly weird.  And then there are weird people and weird circumstances.  Recently, all this weirdness converged on what should have been a relatively … Read more

MS Child’s Play

Multiple Sclerosis no concentration I love games; always have and pretty sure I always will.  And no, I don’t mean people mind games, the stuff of drama and social network craziness.  I mean good old fashioned board games. When I was 5 I was playing Candy Land with my grandmother.  Since she didn’t speak English … Read more

So Much for Life Lines

A multiple sclerosis epic fail That’s it MS– you’ve gone too far!!!  I know I’ve said this before but this time I mean it.  You have not only let me down but you have failed someone close to me who needed my help and I will never forgive you! When you live with an invisible … Read more

MS Moments Not So Magical

What a multiple sclerosis moment REALLY looks like This magic moment, So different and so new These are the opening lines of a sappy sweet song by the Drifters that is actually about a couple falling in love.  Yet the song is stuck in my head as I am analyzing and over analyzing other “moments” … Read more

The Curious Case of Multiple Sclerosis Part 5

Bored as a Board When I was growing up, my mom or my dad, my sister, my grandmother, someone in my life used to like to say, ”if you’re bored, you’re boring.” This phrase has been ingrained on my brain since then. I want to do everything I can to not be boring, although I … Read more

Lessons from an MS Semi Pro

Things NOT to do when you have multiple sclerosis, things your neurologist might not mention   A couple of weeks ago, I was preparing to do an injection of my DMD. For all you MS newbies out there, DMD actually stands for Disease Modifying Drugs. I’m not being condescending defining that for you; I only recently … Read more

An MS Doodle Dandy

Multiple Sclerosis patriotism   With the exception of my late teen/early 20’s years, I have never been much of a rebel.  I grew up with this intense need to please and so when someone tells me to do something, I do it. I floss daily. I get my car’s oil changed every 3500 miles. I … Read more