Category Archives: MS Brain Skills

Bigly Annoyed

An MS nonpolitical political post

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Dear Mr. Trump,

I would like my word back please.  You know the word.  The one people are teasing you about and saying you made up.  I know that you say that the news media is against you but I actual saw several trying to help.  They slowed down your words because they thought you might be saying “big league” and if you were saying “big league” they wouldn’t need to mock you for saying “bigly.” I’m not mocking you however because “bigly” is a perfectly acceptable word.  I know, because my MS brain created it.

Sometimes our thoughts come so fast, we don’t know if the thing that we are describing is a noun, deserving an adjective, or a verb requiring an adverb.  So “bigly” combines “big” for nouns and “greatly” for verbs making it the perfect word for all occasions.  It’s sort of like the other word I created “partalee,” a word my brain came up with when I couldn’t decide if I wanted to say “partly” or “partially.”  Now I don’t have to choose; perfect MS reasoning.

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My only question is when did you hear me say “bigly?”  Were you behind me in Walmart when I told the nice cashier how I bigly appreciated their low prices?  Were you on the other side of the divider at H&R Block when I said I was bigly pleased that I didn’t make enough money to need to pay any taxes?

Well, wherever you heard me use “bigly” I guess I can let it go.  BUT, if Merriam-Webster decides to add “bigly” to their next dictionary I WILL sue.  Perhaps you can help me with that?

Sincerely,

Yvonne deSousa

The thing is, after I finished my letter I grew concerned.  What if Donald Trump didn’t overhear me say bigly?  What if he came up with it on his own?  What does that mean about his brain? Could he have cognitive deficiencies from multiple sclerosis too?

I decided to investigate and the results are not encouraging.  Like me, he forgets things.id-100265731

He forgets meeting people he has met.

He forgets things he says he has said.

He forgets his opinions on things.

He even forgets important dates!  I’ll see you at the polls on November 28th my scary haired friend.

But so what; lots of people forget things.   But he also repeats himself just like I do!!!  I’m constantly saying “MS sucks” or “I’m so sick and tired of being sick and tired” or “Keith Richards is the man!”   Donald constantly says “believe me” or “disaster” or “great again.”

Perhaps those words are important and so not surprising that he repeats them.  It’s important that I share Keith’s greatness with the world and so repeating things isn’t in itself a concern.id-100285623

But what about the lack of focus and the lack of “umph” (not a word my MS brain created) to get things done?  Whenever he’s asked a question his brain takes over and he’ll be talking about healthcare and the next thing you know he’s talking about emails.

I do this kind of thing ALL THE TIME!

And he keeps meaning to release his tax returns and he’s promised people he’ll release his tax returns but he just can’t seem to get it done.

I can so relate…

Still, I wasn’t completely convinced until I saw that he also has trouble explaining what he means.  He knows what he’s thinking and knows the wonderful plans he has but when he wants to share them with other people he just can’t get the words out.  That is such a classic example of MS that I’m now very worried.

Can a person with multiple sclerosis handle having control of the country?

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Perhaps.

I couldn’t do it.  I can’t even handle having control of my TV remote control.

But they do say that MS affects people differently so maybe if he is elected he’ll do alright.

But still, I’d feel better if we knew for sure.  So Mr. Trump, for your health and for the health of our nation, I think I few MRI’s are in order.  Perhaps a spinal tap as well.   And while you’re at it, maybe throw in some neuro-psych testing too, just to be safe….

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Happy Halloween my friends!   I was going to re-post a Halloween blog but I thought the 2016 Presidential election was scary enough!  Can we dare hope that this whole thing is just a Halloween trick and we’ll wake up on November 1st to discover that our treat is other candidates?  Well, one can dream.

Or, one can have some really, bigly nightmares!

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Just another Weird, Weird Day

“My MS is not your MS and your MS is weird.”

Brilliant, semi-famous quote written by me

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Your MS is weird.  And sometimes, I suppose, mine is too.  Life with MS is certainly weird.  And then there are weird people and weird circumstances.  Recently, all this weirdness converged on what should have been a relatively normal, unweird day.

I dropped my mom off for a doctor’s appointment and then left to run an errand.  When I returned to the office and she wasn’t ready I made myself comfortable with an engrossing book. As I sat my throat grew dry and I noticed a water cooler in the corner of the waiting room. I kept meaning to drink some but just couldn’t leave my compelling read.  After this sentence, no, after this paragraph, definitely after this chapter, I will get up and get some water.ID-10056064

But my mom poked her head into the room and nodded at me, which caused the nurse behind her to motion me to follow them.

This was concerning. My mom is very private and hates medical stuff.  If I was needed in her appointment it could be a bad sign.  Turns out, it was simple miscommunication.  Her wave was meant to tell me that she wasn’t quite done but the nurse took it as an invite and insisted I join them.

“Well, you’re here now so you might as well stay,” my mom said.

I sat in a chair opposite the doctor’s desk and my mom sat on the table.  The doctor entered and my mom introduced us. I was surprised by his strong Greek accent as my mother had never mentioned it before.  I could barely understand him but it didn’t matter- it wasn’t my appointment.

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Since I was stuck there I thought I would listen even if I only understood one out of twenty words he said.  I managed to grasp that he was talking about sodium; ie salt, ie the stuff that makes fast food taste good.  He wanted my mom to cut down on sodium.  He wanted this so much that he kept talking about it, a lot.

At least I think that’s what he was talking about.

But he seemed to address most of his talking to me.  So what if I happened to be munching on potato chips- again, it wasn’t my appointment.

(Kidding.  I wasn’t munching on anything but was completely regretting not grabbing that water when I had the chance.)

He told my mom he had something for us.  He left and came back holding a loaf of bread.  He manipulated the plastic bag the bread came in so that a slice was near the opening and he insisted I take it and split it with my mom.  It was an order and I guess the reasoning was to suggest we now eat this particular brand of low sodium bread.ID-100151613

I gave my mom half the slice but didn’t know what to do with my half.  I nibbled on it because that’s what the doctor seemed to want but it was like sawdust in my mouth.  I was trying not to choke.

There was a trash bin in his office but throwing my half away seemed rude.  Without salt it didn’t seem very crumbly. Should I scrunch it up and shove it into my pocketbook?

The whole thing seemed odd.  I’d never had a doctor, even one of my own, offer me a snack before.   I thought of how when I go to church and my priest offers me bread he’s polite enough to also offer some wine to accompany it.  Could I ask this doctor for wine?  What’s the sodium level in wine?

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He then said that we should only get 150 mg of sodium a day.  While he was stating this he was also pointing to a chart that recommended 1500 mg a day.  I was more confused than ever and was now super afraid of salt and hoped he knew the Heimlich as I tried desperately to finish my half slice of bread.   This seemed like major medical weirdness to me.

Outside his office, it was past lunchtime and despite the snack my mom and I were both hungry.  But I couldn’t think of a single place to go for lunch that wasn’t a salt trap designed to suck us in.  My mom suggested a place and I agreed to go there but was firm.

“Mom, we can go there but I’m going to tell the waitress that we don’t need menus as we will have water and plain lettuce for lunch, no dressing.”ID-100182547

“Good for you,” she said.  “I’m getting a menu.”

I stopped in front of the placard that said “Please wait to be seated” and read the specials board looking for anything that wasn’t filled with evil sodium.

My mom made her way into the restaurant and chose a table.  What was she doing?  We were supposed to wait to be seated as the sign clearly stated when I read it again.  I scolded her and she came back.  She also read the sign which in her reading said, “Please seat yourself.”

How did the sign change its wording in the seconds between my reading it twice and my mom reading it?    Since I’ve been able to read since 1st grade, I decided that the sign changing itself was a clear case of multiple sclerosis weirdness.

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After errands I dropped my mom off and headed home.  Thinking about health issues and my MS lack of reading skill issues had me wiped.  But I just had to go to the post office before I rested.  Who knows what was waiting for me in my mailbox- the Publisher’s Clearing House notice of my one million dollar winnings?

An invitation from Bradley Cooper to be his date at the premiere of his new movie?

Free tickets to the dream vacation of my choice?

Fatigue was not going to keep me from missing such important mail!

I collected my exciting mail- the water bill- and then got back into my car which refused to start.  Try as I might, I absolutely could not turn the key in the ignition.

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I struggled.

I forced.

I whined.

I took deep breaths and tried again.

And again.

There were many strong looking males in the parking lot, the type that looked like they might know a lot about cars, but I was too tired, too shy, too independent, too WIMPY to ask for help.  I preferred to sulk instead.

After about 20 minutes of this I called AAA.  I answered all the nice agent’s questions.

“Did you make sure the car is in park?”

Of course I did.

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“Did you jiggle the steering wheel?”

Of course I didn’t.

I jiggled and turned the key and the car started.  It was then that I remembered this same thing had happened to me twice before and jiggling the steering wheel was the mysterious answer.  But I had forgotten this trick.  Automotive weirdness.

Back at home I figured I had earned myself a snack, something crunchy.  I was proud that I had recently purchased something from Trader Joes that was sure to satisfy AND be healthy.  It was a bag called Crunchy Curls– a potato and lentil snack.ID-100132490

I checked the sodium, just to be sure.  And the nutrition label said that while this snack had no sugar, it had 380 mgs of sodium!  That’s more than regular potato chips.

But it’s made from potatoes and lentils?  How can this be?ID-100180475

And that, my friends, is unfortunately called life weirdness.

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What was the book that had me so involved I couldn’t even break to get some water?  It was the newly released Something on Our Minds, Volume 3– an anthology of writings by people living with multiple sclerosis.   The works are as varied as the writers and MS itself. Best of all, all proceeds from the sale of this edition will be given to the Accelerated Cure Project, an excellent non-profit determined to cure the MS beast.

Something on Our Minds, Volume 3 is available on Amazon and is totally worth checking out!

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MS Child’s Play

Multiple Sclerosis no concentration

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I love games; always have and pretty sure I always will.  And no, I don’t mean people mind games, the stuff of drama and social network craziness.  I mean good old fashioned board games.

When I was 5 I was playing Candy Land with my grandmother.  Since she didn’t speak English I figured she would be clueless if I cheated.  Of course she would believe that when I picked a card with two blue squares it suddenly meant that you could jump six blue squares.  She caught me and I got a reprimand.  She spoiled me so it wasn’t too serious but I never cheated again and continued to play.

As an adult I bought my friend’s 9 year daughter the game, Barbie’s Dream Date. I would never buy a girl such a game now but I was poor and stupid then. Anyway, the idea behind the game was that Barbie had to get all these things before she could go to the prom- shoes, a dress, a limo, a date.  I was playing the game with the girl and her little brother and I was losing badly.  Halfway through the child shouted, “Yvonne, you still don’t have a boyfriend!!”

Potential boyfriend?

Potential boyfriend?

Story of my life kid, story of my life.

The point being, that I still think games are a fun way to spend some time.  But trust me; it doesn’t matter if you’re 5 or 50; if you are playing with me I’m going all in.

Turns out I’m pretty competitive and whether I’m having a wine filled game night with my friends or I’ve got a vicious game of Chutes and Ladders going with my nephews, expect no mercy.  I don’t care how cute you are.

My game closet

My game closet

This weekend however, my competitive gaming fell to a new level of embarrassment when multiple sclerosis got involved.

My cousin Kelly and her three kids came to visit.  There was Ashley, a teenager, Noah 6 and Lucy, 7 and three quarters as she proudly told me.  When Lucy came to visit last summer she offered some great MS perspectives that I wrote about in the blog, Out of the Mouth of Lucy.

On this visit we spent the first part of day one at the bay beach and after showers and some iced tea I promised to play a game with them.  The choices were Go Fish and Memory which used to be called Concentration when I was a kid.

Why do the powers that be insist on monkeying with perfection?

My preference was Memory.  I could have played the adult/host card to get my way but neither game actually had that card.

So I played the MS card which yes, believe it or not, works with kids.  I told them that my doctor wanted me to play games to help improve my memory and that argument got me the game of my choice.  Not before Lucy had a ton of questions about my doctor, my medicine, my treatment and other things but still, Memory was on!ID-100297281

This is the game where cards are turned over and you have to turn them two at a time to try to make a match.  Noah and I tied for the win with 9 pairs each.  Lucy didn’t do too badly with 8 pairs of her own but I won!

Even if I had to share that win with the adorable Noah.

The first beach and the game must have taken away some of my brain skills as later we drove to an ocean beach where they were desperate to see seals and I was desperate to show them some.  Standing on the ocean bluff I saw a grouping of birds.

They asked if the birds were seals.

“No,” I told them, “those are birds.  I’m a Cape Cod girl and I see seals all the time so I would know.”

Since everyone around us was pointing and smiling at the group Kelly wasn’t so sure.  She took the kids down to the beach where they saw, and from my perch I finally recognized, what was actually a large pod of seals.

The dots are seals

The dots are seals

What was wrong with my brain??  How fried could it get from one day at the beach?  So fried that I can no longer tell the difference between birds and seals?

This was an incredibly embarrassing faux pas that I eagerly blamed on MS.

Day two of their visit involved walking, whale watching and visiting other family and not only was I wiped out, but my company was too.  Back at my house after the long day, I emerged from the bathroom after brushing my teeth to find everyone was fast asleep.  Even Ashley, the teenager who usually stayed up until all kinds of crazy hours was completely passed out on the sofa.

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That means that either they were beyond spent or I take a really, really long time in the bathroom.

My cousins left the next morning but not before we had to play Memory one more time.  And that game was an epic fail.

I couldn’t remember where anything was at all, even the cards closest to me.

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If that wasn’t bad enough, everything looked the same- the fox looked like the cat, the duck looked like the dog, the lion looked like the rhinoceros.

And it wasn’t just the animal pairs that were messing me up.  The apple looked like a heart and the kite looked like the leaf.

I couldn’t even remember the card that I kept accidentally turning over as it kept sticking to my knee.leafkite

I was such a sorry competitor that the kids felt bad for me.  They kept trying to give me their pairs but I refused!

I didn’t need their cute sympathy.  I was going to make a comeback.  MS or no MS my brain was going to pull through. I would rally and sweep this game!

In the end, Lucy won with Noah a close second.  I had one pair, coincidentally the birthday cake pair, a favorite of mine.

And I think I only had that as the kids might have purposely isolated them so I would turn them over.  Either because they felt bad about my pathetic showing or to see if I really would eat the birthday cake pair as I promised if it was one of the pairs I got.

(I did nibble on it to test its sweetness but I was too overwhelmed with shame to feel like I deserved a cake, even if it was just a cake on a card.)

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The only thing that made me feel better was the fact that this too must be the fault of multiple sclerosis.  The more tired I got from a weekend of hanging out with awesome family and doing fun things, the more the cognitive parts of my brain were going to make me pay for it.

In my book, MS Madness!  A “Giggle More, Cry Less” Story of Multiple Sclerosis, I talk about how instead of the involved neuropsychological tests doctors make MS patients take to determine their cognitive abilities, they should just make patients play FreeCell instead.  I argue that would be an easier way to determine how a patient’s brain is doing.

I would like to amend that now.  Instead of FreeCell, the best way to see how a patient’s brain is doing is by getting them to play Memory with some kids.  Memory is definitely the way to go.

And while I’m furious that MS ruined my Memory playing skills that morning, it was still fun. It would have been more fun if I won but what can you do?

MS is no fun.

Losing at the Memory game is no fun.

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Having a fun time with fun people is fun.

Just make sure you get lots of rest as soon as possible.

The next time Noah and Lucy come to visit I will be well rested and it will be Memory war.

And, unlike MS, I take no prisoners!!

My blogs are always tongue in cheek my friends and I had a blast with all four of my cousins.  I may not be able to always keep up with the energy of young Noah but I’m sure going to enjoy trying!

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So Much for Life Lines

A multiple sclerosis epic fail

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That’s it MS– you’ve gone too far!!!  I know I’ve said this before but this time I mean it.  You have not only let me down but you have failed someone close to me who needed my help and I will never forgive you!

When you live with an invisible illness it is often hard to explain to people what is wrong with you, especially when you mention cognitive difficulties.  What is that?  How is that different from just being a space shot?  Isn’t it really all in your head?

Cognitive difficulties are hard to explain, especially since you are usually having cognitive difficulties right when you need to explain them.

Just this week I was asked to give a talk about my book, MS Madness! A “Giggle More, Cry Less” Story of Multiple Sclerosis to a women’s professional organization.  The talk included a free dinner so of course I was excited.

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I had been given the date, time and location several months prior.  I put the info on my calendar. I put the info on my website. I confirmed the date, time and location several times with the member who invited me. The day of, I decided to confirm the time and location once again.  Cocktail hour was at 5:30; I definitely didn’t want to miss that.

So imagine my confusion when I pulled into the restaurant at 5:35 only to find one car in the parking lot and a big sign that said the restaurant was closed.

How could this be?  Where were the people who invited me?  I called a friend who quickly gave me the name of the place I was supposed to be at, the restaurant where the event had always been scheduled.  Yet each time I looked at the notice, I saw the name of a totally different restaurant.

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The bigger perplexity of all this is the actual restaurant was one I like better then where I thought the talk was going to be.  And the name of it?  The Bookstore restaurant!

You would think since I was talking about my book a restaurant named The Bookstore would have stood out.  Luckily it wasn’t too far away from where I thought I was supposed to be and so I arrived only a tad bit late.

It was a lot of fun.  And this MS cognitive mishap helped give me a humorous opener to my talk titled, Laughing through the Pain.  But the frustrating part was that I checked, rechecked, double checked, triple checked and checked again the location of the event.  Thank goodness my friend was home or I never would have made it.  Of course, I didn’t think to bring the contact info of the member who had asked me to speak. And in case you’re wondering, the dinner was yummy AND I ate the veggies that came with it.

The bottom line is that I’m used to my MS brain doing this kind of annoying thing and the only thing that surprises me is that it keeps surprising me.  But sometimes, this blackout of information is not funny at all.

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My mom needed my help and due to multiple sclerosis, I couldn’t provide it.  I like helping people and I believe it’s important to help others whenever you can.  I like to think of myself as responsible, the one you can turn to in your time of need, especially if your need happens to be in my particular area of expertise.

But my mom, who has been my rock on this journey, called out to me in a crucial time and I was beyond useless to her. My guilt, shame, heartbreak and fury remains.

What did she need that multiple sclerosis refused to provide?

A ride to an appointment I couldn’t give her due to fatigue?

No.

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Help hanging new curtains that my balance would not allow?

No.

Help running errands when I haven’t run in years- MS or no MS?

No.

What my mom needed when she called in desperation was the prize winning answer to a Rolling Stones trivia question just asked on the radio. AND I DIDN’T KNOW IT!

How could that be???  You’re probably thinking, “oh, that’s all.  That’s no big deal.  Yvonne is exaggerating again.  Unless the prize was a thousand dollars.”

But you are wrong!  This was huge!  I don’t even know what the prize was, likely a t-shirt or something.

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The problem is that my mom should have no question that I am her go to person when it comes to the Rolling Stones.

(Frankly, I was pleasantly surprised when she told me she was listening to a radio station that would ask a Stones trivia question until she told me that it was an oldies station!  When did the Stones become oldies?!!!)

I have always prided myself on my classic rock knowledge, especially when it comes to my favorite group.  Back when Who Wants to be a Millionaire had phone lifelines I made sure all my friends and family had memorized my number specifically so I could be their classic rock life line should they happen to find themselves on the show.

Just this week I was watching Millionaire and there was a Neil Young question that, of course, I got right.

What was even more upsetting was the fact that the question my mom asked was very similar to a question a radio station asked me at a concert this summer.  And the answer was the same!  Shouldn’t that have stayed in my memory bank?

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My mom’s trivia question was what was the Rolling Stones first hit?

I tried to cheer myself up with the knowledge that it was a vague question.  What constitutes a hit- top 20?  Top 10? #1?  And does the word “hit” mean in the UK or the US or both?

I could make all the excuses I wanted but the answer was It’s All Over Now and I should have known it.

The scary fact is that if I can’t be helpful to my family and friends when they need me, then what?

If I can’t remember crucial information like Rolling Stones trivia then what will I forget next?

Driving to the wrong restaurant is easy.

I can certainly deal with forgetting how to spell my own name- it’s kind of a tricky one.

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And I’ve long moved on from the time I forgot how to take a shower while I was taking a shower.  Cleanliness is overrated.

But forgetting Rolling Stones trivia? That’s just unforgiveable MS!

But what can I do?   I can only rest, take my meds, play brain games and spend hours with my Stones cds in an attempt to keep this trauma from occurring again.

And I guess I better go buy my mom a t-shirt…

Thank you to the Business and Professional Women’s Association of Lower Cape Cod.  I had a great time!

Once I found you….

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MS Moments Not So Magical

What a multiple sclerosis moment REALLY looks like

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This magic moment,

So different and so new

These are the opening lines of a sappy sweet song by the Drifters that is actually about a couple falling in love.  Yet the song is stuck in my head as I am analyzing and over analyzing other “moments” in my life.  The opening lines fit with the undesirable moments I am talking about; moments that have nothing to do with the rest of the song which is really about, well, desire.

I think the MS community might have stolen the term “MS Moment” from another community, namely, the elderly.  It seems to me that before MS ever really entered my consciousness in any serious way, I heard a lot about “senior moments.”

Actually, just before I was diagnosed myself, I was having a ton of “senior moments” which was scary as I was only in my thirties.  And I wasn’t drinking anywhere near as much as I used to.

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Turns out my senior moments were actually bouts of cognitive deficiencies that as I talked to other people with MS, became MS moments.  As I go about my life looking to be cheered up by a giggle or two, I can actually find some of these moments amusing.

There was the time that I tried to reheat my large mug of tea in the microwave only to have the mug not fit.  I struggled and struggled and grew confused as this was something I did all the time.  There was no reason for the mug not to fit.

Minutes of drinking lukewarm tea later, I realized that the problem was that the “microwave” I was trying to put the mug into was actually the toaster oven.  How does this happen?  They aren’t even near each other on the counter.

Or there was time I got all dolled up and was so pleased that my hair was cooperating that I sprayed it with hairspray to keep it that way.  But as I suddenly started to gag my hair moved and I realized the problem was that my “hairspray” was actually body mist.

And no, it doesn’t hold your hair in place and what they say is true- too much of a good thing is actually quite smelly.

And sure, I’ve forgotten to take the cap off my water bottle before refilling it and I’ve put pepper on my yogurt when I really wanted cinnamon. But these are things that in retrospect I actually find funny.

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But then there are the MS moments that can be expensive.  Too often I buy something I don’t need while forgetting the thing I do need, or buy something and then forget I have it even as I am looking at it and then have to throw it away when it gets way past its expiration date.

I’m pretty frugal and so I make a habit out of looking for coupons, cutting coupons, bringing coupons to the grocery store and even taking the coupons out of my purse.  Only to forget to give the coupons to the cashier, realizing this as I put said groceries away back at home.  Being on a budget makes these MS moments costly but since I’m not dealing with super pricey items, I can often laugh them off too.

It gets harder to giggle though when the moments become frustrating.  I like ice hockey and recently read a great article about a Boston Bruins icon, the player who has his own statue outside of the Boston Garden featuring him flying through the air to make a goal.  Only a couple of days after reading the article I had forgotten this famous player’s name.

Everyone knows this guy’s name.  You can’t say you are from New England if you don’t know this name and I had just read his name over and over.  I had to admit my cluelessness and ask a friend who gently reminded me that the name I was looking for was Booby Orr.

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But I’m sure I didn’t have to tell you hockey fans that.

This multiple sclerosis moment was frustrating in a recreational way.  But it can get more serious when I do things such as search over and over on important paperwork for a crucial deadline only to not see the deadline and turn the paperwork in late.   Or, when I check and recheck the paperwork only to submit it and find out I did half of it wrong even though I checked it, rested, checked it again and checked before turning it in.

Then there was the time I forgot how to spell my own name.

It probably doesn’t help that my last name is a little unusual with the first two letters of it being lower case and then a capital letter three letters in.   What makes it even more baffling is that my cousins don’t spell it this way.  They capitalize the first letter and then the third.

(Thanks dad and Ellis Island for making even our last name confusing.)

Two years after it had been up I was looking at my website and realized that my name was spelled wrong.  How could my web guru have made such a mistake?

I fumed.  I furied.  I frustrated and decided I needed to rest.   I came back to the website and grew even more angry when I saw the misspelling once again.  Yvonne deSousa.

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It was later in the day, just as I was about to send off an email requesting an immediate correction when I realized that my guru had spelled my name on my website exactly as I spell it.  He hadn’t messed it up at all, I had just forgotten how to spell my own name!

(Slight plug for my web guy as he really is awesome and I’m embarrassed about the above issue still.  If you are looking for web help, you can find more about his expertise here-Kemp Resources.)

Many people will say “we’re all spacey” or “I do that all the time..”

But with MS moments the problem is that we aren’t able to check our mistakes because even when we check and re-check them we don’t see the mistake.  It’s like our brain doesn’t accept the mistake as a mistake once we make it.

I don’t know if this also happens with senior moments as what I always thought  were senior moments were actually ms moments and so now I don’t know what to think.

Then there are MS moments that are just not funny at all.

Recently I was taking a shower and being the good conservationist I at least attempt to be, I shut the water off while I soaped up.  When it was time to rinse the soap off, I could not, for the life of me, remember how to turn the water back on.

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This wasn’t a quick lapse of memory.  It took me a while to figure out what to do and how to get the water back.

Who can measure shower time? This didn’t last hours or even minutes but it sure felt like it.  It did last long enough for me to begin to panic. After a while, I remembered how to use my faucet and resumed my shower.

This incident was very scary.  Downright terrifying even.

When people ask why MS fatigue is so bad I tell them it is because it makes these issues worse and these issues can be frightening when you think about them in the long haul.  And that is the crux of MS.

As we close MS Awareness Month it is important to remind others what some of the scary moments of multiple sclerosis looks like.  Because at its core it is a terrifying illness that needs research, awareness and a cure.  Like right away.  Like now!

True, I spend my days open to the amusing moments because that is how I survive, no thrive, in the face of the horrible symptoms and unknown future.  I believe life is too short and when you can find a smile, treasure it.

But it’s never lost on me that those smiles don’t take away from the debilitating nature of MS.

Sometimes though, they just might help you power through them….

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Friends, do you want to do your part to help find a cure for multiple sclerosis?  If so, check out iConquerMS and consider joining with others for are working together for a cure!  Signing up is free and easy, even for someone like me!

Post blog note-  

  Friends,  I unintentionally proved my point within this post. A reader commented that I spelled the hockey great’s name as Booby-yikes!!! I didn’t mean to do that and edited and checked and rechecked this blog several times before posting. See what I mean about MS and the cognitive issues? For the record, his name is Bobby Orr! And yes, I do find this MS moment amusing. I don’t know if Mr. Orr would however…

Focus image courtesy of Master Isolated images at FreeDigitalPhotos.net

Drunk woman image courtesy of Saphatthachat at FreeDigitalPhotos.net

Piggy bank image courtesy of bplanet at FreeDigitalPhotos.net

Don’t forget image courtesy of Stuart Miles at FreeDigitalPhotos.net

Shower image courtesy of winnond at FreeDigitalPhotos,net

Smiley image courtesy of Stuart Miles at FreeDigitalPhotos.net

 

The Curious Case of Multiple Sclerosis Part 5

Bored as a Board

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When I was growing up, my mom or my dad, my sister, my grandmother, someone in my life used to like to say, ”if you’re bored, you’re boring.”

This phrase has been ingrained on my brain since then. I want to do everything I can to not be boring, although I may be losing the odds on that one, and so I have a ton of things to do that keep me from being bored.

I have my regular “to do” lists.

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I have my writing “to do” lists.

I have my “want to read” lists.

I have my “want to watch on TV” lists.

I have “my various, fun ways to get exercise” list.

I live right near a beach for goodness sake!  Just watching the ocean waves change in shape and strength is pretty exciting on its own.

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And then there are the tasks my day is not complete without- catching the weather report, playing SongPop on Facebook, reading my Bible, checking in with my friends to see how they are and so on.

The point being, I have no reason to be bored, ever!  And not just because of things I should do or need to do, but because I have a ton of things that I want to do.  And considering how MS robs us MS’ers of precious hours in our day, I should be pretty busy during those hours.

Nonetheless, just the other day, I commented that I was bored.  How’s that even possible???

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I hesitated to tell anyone this, except for all you readers and those who may randomly come across this post in a basic internet search, for fear that what I would hear back is, “if you’re bored, you’re boring.”

It made no sense that I, a person who basically needs 10-20 hours of sleep a night, and who has a ton of things she WANTS to do, and who is always complaining about never having enough hours in the day, should ever find herself bored.

I was so bored in fact, that I looked up the word.  Two synonyms of the word are fatigued, tired, and inattentive. Ok, that’s actually three synonyms but my brain was too inattentive to do that math correctly.

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This in depth internet research was actually helpful.   Even though I probably would have blamed my boredom on MS anyway, as that’s what I always do when something annoys me, the online definition made it legitimate to blame multiple sclerosis.

If the words fatigued, tired and inattentive don’t prove that this state of being is the fault of multiple sclerosis, than what does?

I researched more even though I was exhausted and all I wanted to do was lie down flat and stay that way, which made me picture an actual board.  I was, officially, bored as a board and it was MS’s fault.

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Leave it to multiple sclerosis to have yet another frustratingly, contradictory aspect that I like to call “curious.”

MS greatly zaps time from an MS’ers day due to how much longer it takes us to do the most basic of things and how much extra rest we need.  Yet in the few hours you have left in your day MS can cause your brain to become so unhinged, so completely devoid of any activity, that you have no motivation to do anything you want to do.

(For the record, antonyms of the word bored include energized, exhilarated, refreshed- not MS words at all.)

So being bored when you’re not bored and have no time to be bored is another curious case of multiple sclerosis.

But what to do about it?

I searched more and found that BuzzFeed Life has a list of 17 Things to do when you are Bored Out of Your Mind written by Leonora Epstein.  What was on the list?  Make more lists!

How is that helpful??  I already have lots of lists.  Also among the ideas were do a puzzle or plant an herb garden.  Clearly this list was for people with just regular old boredom.  It was not designed for people with the mega boredom that comes with multiple sclerosis.

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I needed to know how to combat this useless, brutal time of nothingness that MS seems to insist I use to waste what little of my day that I am given.

I needed to know things I could do that didn’t require any real brain function at all.

So I started a new list, a list of 18 Things we who have MS can do when we are bored-

Sit Still

Lie Down

Jiggle your right leg up and down

Jiggle your left let up and down

Look at the ceiling

Breathe

Look at the picture on your wall

Look at your hands

Look at your feet

Pull up your socks

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Look up the word ‘boredom’ on your computer

Swivel in your swivel chair

Rock in your rocking chair

Open the curtains and look out the window

Close the curtains and sit back down

Wonder how the spider got in your bedroom

Count this list to see if there are really 18 things to do listed

Look for lint on your living room rug

(NOTE-don’t even try to collect the lint, that is a project for when you are not bored!)

Feel free to use my list whenever you want readers; I’m all about helping others.  I want to do my part to help make sure that MS or not, you are never bored.

Because supposedly, “if you’re bored you’re boring…”

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Image Credits

Ocean foam image courtesy of artur 84 at FreeDigitalPhotos.net

Question mark image courtesy of Master Isolated Images at FreeDigitalPhotos.net

Busy woman cartoon images courtesy of jesadaphorn at FreeDigitalPhotos.net

Wooden board image courtesy of nuchylee at FreeDigitalPhotos.net

All five other images courtesy of Stuart Miles at FreeDigitalPhotos.net

 

Lessons from an MS Semi Pro

Things NOT to do when you have multiple sclerosis, things your neurologist might not mention

 

A couple of weeks ago, I was preparing to do an injection of my DMD. For all you MS newbies out there, DMD actually stands for Disease Modifying Drugs.

I’m not being condescending defining that for you; I only recently discovered what it stood for myself.  Before that I thought it actually stood for the Don’t Make me Do them meds or those Damn MS Demon shots.

Despite all the oral medications that have been recently developed, I’m still doing shots.   Even though I don’t like them, they seem to be working.

In order for me to get through the self injecting process, I need to use the auto injector.  One push of an awful button and then I’m done.  But this time, when I pushed the button, nothing happened.

As far as I could tell, I had done everything right.  In investigating this issue, I held the tip of the injector up to my face and looked inside.  HUGE mistake.

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The injector fired suddenly and thankfully, miraculously, I was able to jerk my hand quick enough to keep the meds and the needle from my eyes.  Instead, the medication dispersed all over my thermal Bruins blanket which was just silly.  I have owned this blanket for 15 years and it is still one of the best Christmas gifts ever!  It is super warm, super strong and super healthy and it doesn’t need any drugs.

(Unlike the time I used one of my injections to fix a wobbly coffee table but you’ll have to read MS Madness! for THAT story.)

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Anyway, after the auto injector blunder I realized I had just learned a valuable lesson in an MS thing not to do.  Then it occurred to me that this incident happened on 12/17, the five year anniversary of my MS diagnosis and I didn’t even realize it at the time.

I never forget the date of my diagnosis but I also never remember it either.  (If that makes sense to you, you may have MS.)

 

The coincidence of the trouble with this particular shot made me think back to the many other lessons I have learned on my MS journey.  I decided the right thing to do would be to share them with you.

So here you go- I hope they help.

Note- not all of them are MS related but they are all MS related.

(If that makes sense to you then, again, you may have multiple sclerosis.)

The first one we already covered- don’t look down the barrel of a loaded gun- oops I mean, loaded auto injector.  (But don’t look down the barrel of a loaded gun either- that’s not good.)

Secondly, if you are prepping your upper left arm to give yourself a shot, don’t inhale the alcohol swab. It’s not Jagermeister.  It won’t taste good or be any fun.

 

You CAN inhale the alcohol swab if you want to go on your own weird cleanse as you won’t feel like eating or drinking anything for days.  Except pretzels.  You may want lots and lots of stale pretzels…

Third-don’t look back after a cute guy smiles at you.  You may just wind up tripping over the threshold of the door you are supposed to be coolly walking through, not awkwardly falling through.

The fourth lesson is similar to the first.  If you are deciding whether or not you like the scent of an air freshener, don’t spray it into your face to figure it out.  There are easier ways to get the information.

The next two lessons take us into the kitchen.  The fifth is that salad dressing is for salad, maple syrup is for waffles.  Perhaps it might help to remember if you don’t keep them side by side on a shelf in your refrigerator.

 

Sixth, don’t spray your kitchen floor with cooking spray.  Believe it or not, that’s not what it’s for.

And it doesn’t matter how much you like hockey, the sprayed kitchen floor doesn’t cut it.  Nor does it mean your favorite hockey team (the Bruins) might show up just because your kitchen is now as slipperery as an ice rink.

Maybe if you have multiple sclerosis you just shouldn’t use spray things at all…

The seventh lesson is this-don’t sell drugs.  Not even if you have the purest of intentions.  Not even if you are offering such a discount that they wind up being free.  Not even if the drugs will go to waste if you don’t pass them on and people desperately need them.

(For the ugly details on how I learned that lesson check out my prior blog post Lawbreaker.)

 

Since it was near Christmas time when I almost accidentally injected my eyeball, the next two lessons are related to the season.  The eighth lesson is don’t try to wrap presents with double sided tape.  It will not work, not even if you’re Martha Stewart.  Better yet, don’t buy double sided tape, even if it’s a good deal and looks just like regular tape except for the tiny words that say it’s double sided.

The ninth lesson is don’t buy Christmas cards with glitter on them.

 

Yes, the glitter is pretty.

Yes the glitter is festive.

But is also a pain in your injection bruised behind.

It will get everywhere.

It will multiply like termites.

It will cover you and everything around you.

It will get in your hair.

 

It will get on your teeth,

It will get on those Christmas cookies you are not supposed to be eating.

It will get on your double sided tape and the two will conspire to enfold you into an endless glitter filled world.

The tenth and last lesson is the most important.

Here it is-

Seriously, very seriously, don’t take yourself too seriously.

Here’s hoping for a healthy, happy, humor filled holiday for all of you!!

 

 

Decisions, Decisions

Another up close, in depth, comprehensive look at “cog fog”

I tried to catch some Fog.  I mist.  Anonymous

 

One of the gazillion frustrations of life with MS is trying to explain “cog fog,” also known as brain fog.

I once had a neurologist tell me that if I can’t explain it, then it must not exist.   Even in the brain fog moment that I happened to be in at the time, this comment didn’t seem to make sense.

Isn’t that the very point of brain fog?  It makes things hard to think.

It makes things hard to describe.

It also makes things hard to decide.

 

So even though today my brain is the foggiest it’s been in a while, I decided I would take a moment to try to describe “cog fog.”

See what I mean about decisions?

One cognitive difficulty for me is simple math. Math was never my deal, MS or not.

All I remember about my high school math classes is that one teacher was always covered in chalk dust and the other took points off if you turned in a page ripped from your notebook that still had the little squiggly pieces attached from where you ripped it.

 

I talk about my ongoing math issues more in a former blog post MS Counts.

And I recently talked about how when MS takes over your brain sometimes even the most basic of decisions seem impossible to work out, To Shower or Not To Shower-That is the MS Question

MS can make me easily overwhelmed and every factor imaginable takes over when trying to decide something. Another frustration of “cog fog” is that it can often frustrate others, especially when I need to combine it with numbers and decisions.

Here are some things that my MS brain makes difficult in my life and that are hard to explain to those who find it weird.

 

Making coffee–   This should not be a big deal as I don’t even drink coffee.  Put some hot water and a tea bag in a mug and I am good to go for the day.

The problem comes when I have to make coffee for someone else.  Many people have tried to show me how to do this and I can never remember the coffee scoops per water ratio.

Sure, I could write it down.  But where?  How will I remember where I have written this information down?

One might suggest that I just read the directions on the back of the coffee container.  But those directions offer variables- for stronger coffee do this, for a larger pot, do that.

How do I know what is a large pot and if my guests want their coffee stronger or weaker?  Why can’t they just drink tea like the rest of the world?

 

Multiple email addresses–   Whenever someone changes their email, or gives me a second or even third email address, I’m lost.  Not to mention the fact that my email server keeps changing the rules.

So what do I do? If I have to send an email I will send it to all the addresses I have for the person.  This causes them to get several emails and get annoyed with me.  I’ll ask which address to use and they will send a response like, “this one, this one’s the best.”

Well which one is that?  My computer just puts your name in the address bar so I still have no idea which is your preferences.

Or, to get back into the decision thing the person might say “I just use this one for work,” or “I just use this one for fun stuff.”  Now I have to decide if what I am emailing is fun or not and then go back to trying to figure out which email address is which.

 

Keys– My dad recently picked up my key chain and wanted to know why I had so many keys and what were they all for. I had no idea.

I started to try to figure it out and just got overwhelmed. One clearheaded day I actually started locking and unlocking stuff to try to further investigate.  And then I got confused again.

I went to the hardware store and bought those little color tabs you can put on keys to signify where they go but of course, I can never remember which color is for which lock.  I can write that down but where- on my keys?  That certainly would make it easier for the burglars.

 

Gratuity– The best example of how brain “cog fog” can mess with an MS’er is tipping.

Generally I’m a nice person who wants to be generous.  I waitressed one miserable summer and even though I was super klutzy and lousy at it, (I choose to blame that on MS even though it was 20 years before my diagnosis,) I appreciated a good tip.  And I’m not cheap.

But if I go to a restaurant with someone the words I dread are “I’ll get this, why don’t you just pick up the tip?”

Why is this tough?  First you have to remember the going tip rate- 18%, 20%, 25%.  Then you have to do math.

Then you may want to account for the variables associated with a range from lousy service to wonderful service.

(I may be nice and I would never stiff a server but if you are rude you are getting the minimum tip: unless of course I screw up which is likely.)

 

Then, because it’s not cool to leave change, you round the tip off-more math.  And more decisions- should I round up or down?

To help combat this particular frustration I got myself one of those tip cards.  So if I’m in the tip paying position I will pull out my little card.  And it helps, if I can read it in the dim light of the particular establishment I happen to be at.

But often, my companions object to the card.

“You don’t need that to figure out the tip- just round off the bill, take 20% and then lower it slightly.  Oh wait, he was really nice, raise it a bit.  Do you have enough singles?  It’s not cool to leave change, even quarters. Oh wow, that’s a really generous tip, did you mean to leave 40%?”

It’s enough to make someone never want to go out to eat.

 

But the confusion doesn’t end there.  It pops up again with hairdressers, taxi drivers, delivery people, the kid who pumps your gas, and on and on….. I swear I gave my hairdresser a 60% tip last week.  No wonder she loves me; it has nothing to do with my wavy hair and sparkling personality.

In the grand scheme of life, none of these cognitive difficulties are that big.  And when you put them in the context of the grand scheme of multiple sclerosis, they’re even smaller.

But still, when you need a way to describe what can’t be described, here you have it.

At least, I think this is descriptive…

 

An MS Doodle Dandy

Multiple Sclerosis patriotism

 

With the exception of my late teen/early 20’s years, I have never been much of a rebel.  I grew up with this intense need to please and so when someone tells me to do something, I do it.

I floss daily.

I get my car’s oil changed every 3500 miles.

I pay my taxes BEFORE April 15th.

I wait ten hours after eating before swimming.

About the only rebellious thing I do these days is consume raw cookie dough against the advice of both the raw dough packages and that of my older sister.   But I try to do that in the privacy of my own home so as not to offend anyone and I do feel bad about it, kind of.

This sense of doing the right thing carries over into being a good citizen, even when MS makes me feel wiped out and yucky.

I suppose if I was really a great citizen I would have skipped my brief rebel years and joined the military.  The only problem with that was the fact that I am total wimp and wouldn’t have lasted one day in boot camp.  So hats off and deep, deep gratitude to those brave folks who defend our country!

The least I can do to be a good citizen is to vote.  I understand how government works; I watched Schoolhouse Rock when I was kid.

 

(I’m still totally furious that Conjunction Junction beat out I’m Just a Bill for the number 1 spot in a recent special featuring all the episodes.  I demand to know who voted for that!)

So on primary day I put on my goody two shoes and headed off to the polls.  It didn’t matter that not many people bother to vote in the primaries.  I was going to because it’s a privilege and it’s my patriotic responsibility to honor that privilege.

I even did research on who to vote for.  And by research I mean I asked my very smart friends who have ideals similar to mine who they were voting for and then I voted for that person too.

 

(And I did watch a commercial or two- I try to take this voting thing seriously.)

Luckily, my town is small and since it was only a primary the polls weren’t too packed and I didn’t have to stand too long to cast my ballot. But my civic duty was not done for the week.  The next day I had jury duty.

Honestly, I wouldn’t mind serving on a jury. I actually think it would be interesting.  I just can’t imagine any lawyer would trust me on a jury with all of my cognitive issues and my extreme fatigue.   But being the good citizen that I am, I would let the court make that decision.  I was happy and honored to do what my government asked of me.

 

The problem was, this was a lousy week to have to serve.  I had a lot going on and precious few non exhausted hours to do them in.  Of course, I didn’t know this would be the case when I got my notice, the notice that gives you the option of postponing jury duty.  Being on the road by 7:15 the morning of, standing in long lines to be processed, and waiting long hours in a hot stuffy courthouse was just not conducive to my life and my MS that week.

But it was what it was and I would just have to do my best.  I took comfort in the fact that I had one of those ‘call the day before’ notices.  Every time in the past when I received one of those, I never had to actually go in.  I would call the automated line the day before and an automated voice would tell me I was excused.  That’s what would happen with this jury service, it just had to.

When people who don’t have MS say they don’t understand ‘brain fog’ or ‘cognitive difficulties’ you are usually too fogged to explain it to them.  So allow me to do it for you.  The following is what brain fog looks like:

At 4PM on the day before my service I called the courthouse.  The instructions were clear- do not call even one minute before 4.  To be on the safe side, I waited until 4:02.

The automated voice thanked me for being a good citizen and calling.  Then it informed me that all jurors with groups numbered 0- 58 had to report.  I had been assigned group number 0060.  I had to go.

I was distressed.  I absolutely could not believe it.  How on Earth would I get through this crazy week with jury duty smack dab in the middle of it?

 

I thought perhaps I made a mistake.  I called again.  And again, was thanked for my service and told that all jurors in group numbers 0-58 had to report.  I was resigned to my patriotic fate.  I would just have to suck it up.

I postponed that evening’s shot so I wouldn’t face the horribly achy side effects during jury duty.

I went to bed super early.

I set two alarms to get up on time.

I stopped on the way to get some much needed caffeine.

And I stood with my burning legs in the long check in line, chatting with other potential jurors.

When it was my turn to hand in my summons, the court officer pointed out that I hadn’t needed to report at all.   WHAT??

Didn’t I call the automated number, he asked?

“I did.  It said all jurors with group numbers 0-58 had to report.  So at number 60 that means me, right?”

The frustrating thing about ‘cog fog’ is that once your brain makes a mistake, even a simple counting mistake, your brain then accepts that mistake as correct.  So even though I have known how to count since first grade and I called TWICE, I still screwed up.

I’m such a dedicated citizen that I showed up for jury duty when I didn’t even need to.

 

The court officer told me that my service was completed and kindly sent me on my way, probably noting my name and number for next time to tell the judge “this chick is way too dumb to serve, she can’t even count to 60.”

The good news was that I got back the badly needed day in the middle of the week.

The bad news was that I was so frustrated by my mistake that I wasted a lot of that day stressing over it.

Before I knew it the night passed, and when I turned on Facebook the next morning I was reminded of the date.

It was 9/11, a date no American will ever forget.

The date got me emotional.

It got me sad.

And then, it got me proud.  I started thinking about the amazing country I am lucky to live in.

 

I started humming Yankee Doodle Dandy.

Here’s another way brain fog works, your mind starts wandering down seemingly insignificant paths for seemingly no apparent reason.

I looked up Yankee Doodle Dandy.

Did you know that doodle was actually an insult?  The phrase Doodle Dandy was meant to insult the earliest American patriots, doodle meaning dumb.  But they chose to adopt the phrase instead.

And so it was with me-MS dumb or not, I’m happy to be an MS Doodle Dandy; an MS Doodle Dandy who’s ready for jury duty whether she’s wanted or not.

PS  If you are humming Yankee Doodle right now than you are a true patriot for sure!

 

 

Twice Bitten

Multiple sclerosis nutrition woes again….

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Yes, I’m trying to get healthy for summer.  And yes, this blog is a repeat, originally published spring of 2013.   But I figured it was ok as my menu issues continue…..

I swear that I really am taking this whole healthier diet thing seriously.  Yet, I just seem to falter at every turn.  And the most frustrating thing, (although with multiple sclerosis it is hard to list frustrations in order,) is that when I think I am on to something good, it gets proved to be wrong.

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Earlier in April I was munching away on an apple; supposedly a very healthy snack. I was telling myself how delicious it was and how many vitamins I was consuming when out of nowhere, I bit out a bite of the inside of my cheek.

It hurt, a lot, and the apple got a little bloody and so I gave up. I didn’t realize that my teeth were that sharp and that a healthy diet could be dangerous.

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And if I am being totally honest, I was totally lying.  It wasn’t delicious at all, before or after the blood.

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Luckily, my social media friends informed me that it was free cone day at our local Ben and Jerry’s.  Once the blood stopped, I headed there and the cold cone helped numb the area.  The servers were super friendly and said that customers could come back as many times as they wanted as long as they waited in line and weren’t too obnoxious about it.

The cold helped but I didn’t want to use my earlier healthy eating incident as an excuse to fall off my ‘get fit’ plan.

So I only went back three times.

Kidding. I suffered through my pain and only had one free cone. I paid for the other two.

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I take comfort in the fact that at least I start my day on a fiber filled, all things healthy note.  I have a favorite cereal that is pretty nutritious.

I hesitate to name it here in case someone is able to burst my bubble and tell me that Fruit Loops aren’t that good for you.

Kidding again; the cereal is not Fruit Loops.

After hearing a neurologist speak on the benefits of flax seeds (see my prior blog post Not Working It Out,) I bought some and started adding them to my cereal.  They provide extra crunch and make my breakfast extra filling.  And I was losing weight so I felt this was finally a good breakfast choice.

THEN, I was informed that the body does not really digest whole seeds and it is better to get your flax in the powder form!   There went my extra crunch and now my cereal is just powdery and gross.

It is enough to make an MS’er pull out her Fruit Loops coupons- at least there would be fruit.

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Finally, in the scope of consuming more veggies, I made a wonderful, good for you recipe.  It is a casserole made with kale, whole wheat pasta, onions, diced tomatoes and ground turkey.

The diehards might argue that any type of pasta is not really ideal and casseroles are not the best choice, but I have to find something edible and since there was a lot of good in this recipe, I felt it was a great compromise.  I had made it once before and loved it.

Unfortunately my MS brain got a little cocky in the kitchen and also got a little lazy about measuring things.  This time it came out way spicier than intended but still not bad.  Hey, crushed pepper is also good for you, right?

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I ate my dinner and had a ton left over so I gave some to my sister and her boyfriend for their dinner.  Then I watched the news.

Turns out a recent report found that A LOT of ground turkey contains antibiotic resistant bacteria, fecal bacteria and E-Coli!  I won’t tell you what fecal bacteria is, but if you want to be grossed out, look it up.

The news didn’t say which companies they tested or where they bought the ground turkey leaving you to wonder and panic all on your own.

To make matters worse, this report wasn’t even a recall but a warning.

What does that mean?

It means that it was up to my indecisive MS brain to decide how disgusting this news was and what to do with the rest of the casserole.

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It also said that if you heated the turkey to 165 degrees, you probably killed all the bacteria and E-Coli.  How the heck did I know how much I heated the turkey?

It was hot, I know that. I could tell when I dropped some on my foot after transferring it from the pan and my foot stung a bit.  Does turkey need to be 165 degrees before it stings?  Or does it sting at 150 degrees? 160?

The folks who make ground turkey came out with their own report where they stated that the results of the first report were misleading; but I have heard that they are all just a bunch of turkeys.

What is a committed MS’er to do?  What would you do?  And what if a pizza joint and a burger place where within a ten minute drive from you????

Yes, healthy eating with MS truly bites.  And as in the case with the apple, I say that literally!

ID-10054742

 

Looking for some fun, lighthearted reading for the summer?

Do you enjoy a book about the antics of someone crazier than you?

If so, might I suggest one of my favorites-

MS Madness!  A “Giggle More, Cry Less” Story of Multiple Sclerosis

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